View Full Version : So good to be done!
01-20-2007, 09:57 PM
:icon_mrgr Lily had her surgery on 16th of January for sagittal cranio. Her operation was about 4 hours long. Longer than for little babies with same cranio as she is 19 months old so it was more complex with some bone needing to be bent back into place and lifted to make room. We were told she sailed through the surgery itself and only needed a little blood as a precautionary. It was the hardest experience of my life but she did so well and really we only had a few difficult days trying to keep her as comfortable as possible. Had a few scary moments with some bleeding after surgery though it was all kept under control. She was off the morphene within 2 and a half days and was home 4 days following the surgery. She had quite alot of swelling and a black eye which has subsided so quickly. Her head looks so good and we were told that it was pretty tight up there with not alot of room for her wee brain. I really can see that the pressure which was about her eyes is gone. I just feel like the weight of the world has been taken from my shoulders. I still cant get over that less than 12 hours after surgery she pulled herself up and started pointing to things for us to bring to her - books, phones and toys. She then asked for a drink and grabbed it outta my hands and had a good drink. Oh, and for those who read my earlier thread - surgery went ahead and she didnt get chix pox .
We are just so thankful that Lily has been treated for her condition and we all survived. what a journey.
01-21-2007, 12:31 AM
Congrats Welcome to the other side(I love being able to say that lol)
01-21-2007, 10:40 AM
Well Done, I'm glad it went well for all of you!!!http://www.craniokids.org/support/images/icons/icon7.gif
01-21-2007, 01:13 PM
so glad the surgery is behind you now.
what a relief, right!
welcome to the other side.
speedy recovery to lily.
01-21-2007, 05:39 PM
Thanks for the update! I've been wondering how you were all doing! I'm glad she is doing well. I hope the recovery continues to be speedy!
01-21-2007, 09:11 PM
Best wishes for Lily's speedy recovery!
01-23-2007, 12:25 AM
:yipee Hooray Lily! Sending well wishes your way for a quick and easy recovery!
01-26-2007, 01:32 PM
Great so happy it went well, now you can stop worrying.
01-26-2007, 11:30 PM
Oh, thank you for sharing! What a great experience! We keep you all in our good thoughts! Congrats and welcome to the other side!
:wave2 :wave2 :wave2 :wave2
Anna, so glad to hear everything turned out ok. Lily sounds like a tough kid. You too, 4 hours...good grief! My son was in for 3 hours at 6 weeks of age, it was the hardest thing I've ever had to go through and I can still remember it vividly... he turns 23 on Feb. 1st.
05-08-2007, 01:20 AM
So glad to hear that Lily sailed through her surgery experience. She sure is a beautiful little girl.
My son Landen was born with Sagittal synostosis too, but was diagnosed at 2 weeks, surgery at 2 months. It's been easy since he's immobile.
How did you manage to keep a little toddler from bumping and bruising her noggin? Did she wear a helmet?
Again, glad to see your darling little girl is doing so well.
Tyler 8-96, Jordan 11-98, Liberty 4-03 (all no cranio) Landen 2-07 sagittal synostosis diagnosed at 2 weeks, surgery at 2 months
05-13-2007, 11:00 PM
thanks for your reply, yes i was very nervous about lily bumping her head or being poked in the soft spots - so she wore a rugby helmet for about a month. soon realized that she no longer needed it and her scalp is now fully healed. Her surgery was on the trickier side for the surgeons because of the late diagnosis, taking 5 hours. an absolute nightmare for my husband and i but she did amazingly well.
Awesome news and I love that pic of Lily in the suitcase it is so cute! Congrats on a surgery gone well :)
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