thickened frontal bone

[paynesmom]

I know I've mentioned the "thickening" of Payne's frontal bone...but I couldn't find anything on here or anything anywhere of others that have heard this from their doctors. I finally found some mention of the "thickening" of that bone in this article:

http://radiology.rsnajnls.org/cgi/reprint/140/3/681.pdf

And although the study is older (VERY VERY OLD in the world of medicine), I wondered what you guys think of it.

[Debbied]

I think it is really interesting..I have not seen any comment on here or anything else I had read about the bone thickening either. This does at least mention it. This is the first study I have seen where they mention they had followed non-surgical patients! See now this is the type of info I expect our doctors to share with us, why don't they??


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[Lisa]

Bradley's coronal sutures were very thick where the suture had fused. I am assuming this is what you are talking about. Once the suture fuses, the bone thickens, forming the obvious ridges that we see in our cranio babies on here. Dr. David had to thin them down quite a bit after she released the fusions.

[Josephsmommy]

:omgI was recently told after this last surgery that his skull was the thickness of a 10-15 year old. The dr's said they've never seen anything like it. In fact, he's going to get some genetic testing done becasue of it. I'll keep you all informd. Hhhmmmmmm!

[ksue]

I know this is an old post, but I found this very interesting. In all my searching, this is the first time I've seen pictures of anyone whose deformity got better. The little girl especially, though the pictures are very grainy of her as a baby, looks drastically better as a teenager. I'm a little dumbfounded really. Both Fearon and Staffenberg have told us they feel the deformity will worsen. I think we can clearly say this is the case sometimes (perhaps most of the time?), but makes me wonder if there isn't more hope than we'd thought previously. The study seems to indicate that non-surgical cases had excellent results, just as the ones who had surgery. Hmmm... makes you wonder why there aren't more studies with pictures readily available for parents. I know our doctor said they don't follow up on non-surgical cases. Curious if anyone has had their doctor mention any studies (especially on non-surgical cases). I know I am only at the beginning of researching what some of you have been researching for a good long while.

[dannlark]

I think the improvement may sometimes happen in milder to moderate cranio, but for the more severe cases, I think that surgery is the only option. My son had a friend in kindergarted with untreated severe metopic cranio. At 5, his head STILL looked like this from above <). Although the point of the triangle was more rounded now, it was VERY clear to me that he had this deformity. He also had the close set eyes. He was VERY cute, bright and friendly and for most might have looked ok with a bit of, "I can't put my finger on it...?" He clearly didn't have a great outcome of no surgery done...

It was an interesting study but IMO a bit small to truely be of any real value. I think some kids might fair better with no surgery solution than others, but who knows which?:dunno

[Debbied]

I almost forgot about this thread..It was interesting to me when I first saw it and even more so now..I need to get some pics of my DH as a baby on here and some of my son also. My DH has a ridge at the top of his hairline and his baby pics show some shadowing an narrowing at the temples..Henry also has this which is why I worry about him even though he is mild. To look at my DH now though he has what I would consider to be a normal headshape. Birdseye view of it is totally like a head should be shaped not narrow or anything. I think that it is possible for mild to moderate to compensate in someway with extra bone so that when the person is adult the ridge no longer shows. I know that the doctors say this sometimes, like "oh we can burr that down but they probably won't need it because the bone grows". Maybe in some cases that is actually true??
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[ksue]

It is nerve-racking, isn't it Debbie? To wonder whether it would be better to let things go and take that chance versus the taking the risks of surgery? I am clearly still on the fence about my daughter! We have an appointment with Dr. Staffenberg on Tuesday as he is much closer and we got in to see him so much sooner than Dr. Fearon (not cancelling with Fearon yet though!). I'm hoping he can help pull us off the fence in one direction or another.
I agree it was a very small sample size and like you said, Larkin, who knows which ones will fare well without it? And I guess that's just the situation with every part of this- who really knows? I wish it were more clear cut.Or that all the doctors agreed one way or another.
As far as the family pattern thing, I have also wondered. My husband definitely has a bulge up around where his soft spot closed, unlike me or my other two daughters, but just like my daughter who has trigonocephaly. He doesn't have the triangular shape or ridge down forehead though(at least not now). I think I'll ask my mother in law for some baby pics.

[ksue]

Also, thanks for mentioning about the kindergartener with trig., Larkin. I've never seen (in person) anyone other than my daughter with it, and I've always wondered what I would think if I wasn't a mother actually going through it myself, seeing her constantly, and checking everyone's heads!
And of course, if doctors could be more forceful about the risks of neurological impairment, then this decision would be hands down much easier to make. And if our pediatrician didn't blow it off... and if we had a guarantee of surgical safety... and if pigs would just fly, for crying out loud!!!

[Debbied]

It sure is! I am glad you are meeting with Dr. S. He is one of the best so please keep us posted :) And yes, do ask your MIL for baby pics of your DH they can sometimes be very telling ;)

Hugs!


It is nerve-racking, isn't it Debbie? To wonder whether it would be better to let things go and take that chance versus the taking the risks of surgery? I am clearly still on the fence about my daughter! We have an appointment with Dr. Staffenberg on Tuesday as he is much closer and we got in to see him so much sooner than Dr. Fearon (not cancelling with Fearon yet though!). I'm hoping he can help pull us off the fence in one direction or another.
I agree it was a very small sample size and like you said, Larkin, who knows which ones will fare well without it? And I guess that's just the situation with every part of this- who really knows? I wish it were more clear cut.Or that all the doctors agreed one way or another.
As far as the family pattern thing, I have also wondered. My husband definitely has a bulge up around where his soft spot closed, unlike me or my other two daughters, but just like my daughter who has trigonocephaly. He doesn't have the triangular shape or ridge down forehead though(at least not now). I think I'll ask my mother in law for some baby pics.

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