momtokandg
07-23-2009, 11:17 PM
Hi, my daughter was diagnosed with Metopic cranio at birth and is now 7 weeks old. We're in the process of getting everything ready for surgery and we had an MRI last week to check for ICP. When we met with the neurosurgeon yesterday he came into the waiting room and told us everything was good, and that we had nothing to worry about that there was no ICP and everything looked good. However, once we got into the room he mentioned, almost as a side note, that he found very interesting that her Corpus Callosum was thinner then he expected, but he wasn't concerned. I'm still a little concerned because when I look online about issues with the corpus callosum there are a lot of pretty scarey things associated and there is a diagnosis of Agenesis of the Corpus Callosum that can have severe developmental issues including seziures. He didn't mention "Agenesis" when we were talking. I spoke to my pedi today and he doesn't recall that being in the report, but understands my concerns.
We've made an appointment with a pedi neurologist, but I was just wondering if anyone else had a similar issue come up associated with cranio.
Thanks!
Jen
We've made an appointment with a pedi neurologist, but I was just wondering if anyone else had a similar issue come up associated with cranio.
Thanks!
Jen