View Full Version : Hypermobility?
Lily has not had genetic testing done as of yet. She's had two clinical evaluations so far and goes for blood work this Oct.
So far they don't think her bicoronal cranio is due to a syndrome, but I notice that she is extremely hypermobile (double-jointed) in her hips, knees and ankle joints.
I'm just curious if there are any kids w/ syndromes out there that share this symptom.
Avery's Mom
07-06-2009, 02:10 PM
Avery has one double-jointed thumb, just like mine but as far as I know that is all.
How do you know she is double jointed, if I may ask? Is she like able to turn her legs around wierd and stuff? All of Avery's doctors always comment on Avery's thumb and I'm like "There is nothing wrong with it and no you cannot FIX it" lol
craniomommynbaby
07-06-2009, 07:58 PM
I am double-jointed in my left thumb. I can pop it back and forth and gross out people.
They say that Simon is double-jointed because of his ability to escape a straight jacket and 5 adults when they were getting an IV in him.
Avery's Mom
07-07-2009, 08:20 AM
I am double-jointed in my left thumb. I can pop it back and forth and gross out people.
They say that Simon is double-jointed because of his ability to escape a straight jacket and 5 adults when they were getting an IV in him.
It is our left thumb too! How funny!
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