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View Full Version : New here but not to craniosynotosis



NixyBee
06-16-2009, 07:12 AM
Hi, my name is Nicola an I was born with Chotzen syndrome (as was my mum) and we think my daughter may have it too and we are waiting for our appointment with a consultant to have it confirmed and for us to take the next step.
I needed surgery as a baby and follow up check ups untill I was about 10.

Anyway I'm 22 years old with a 6 week old daughter (who seems to think I'm a very good bed atm lol) so on maternity leave atm but am normally a full time nursery nurse.
ummm yeah thats about it lol

donnamilliezac
06-16-2009, 07:14 AM
hi welcome to CK and congrats on your daughters birth. sorry you are having to go through all this but i'll keep my fingers crossed for u.

mrs j
06-16-2009, 07:49 AM
Hi Nicola and welcome to ck, congrats on your daughter. Sorry you are having this worry, hopefully you wont be waiting too long for your appointment, keep us informed. :hugg

mrs j
06-16-2009, 07:51 AM
oops, i forgot to ask Nicola, what type of cranio did you have, is this a concern with your daughter as well.xx

Avery's Mom
06-16-2009, 09:54 AM
:colors to the site. This is a great place for support and advice.

Katie
06-16-2009, 10:01 AM
Welcome to Cranio Kids! We have several other cranio adults on here I hope you can get to know. Congratulations on the birth of your baby!

tracy_girl05
06-16-2009, 10:34 AM
Welcoem to CK! and congrats on your new addition! I am so glad that you have found us- your story will help so many other new mommies. Cant wait to get to know you !

charliesmummy
06-16-2009, 05:19 PM
Welcome to CranioKids Nicola & congratulations on the birth of your new daughter. You have certainly found a wonderful site here. Looking forward to getting to know you x

hayley
06-16-2009, 05:32 PM
Just wanted to say hello and welcome you to this site x

Sophia's_mom
06-16-2009, 05:43 PM
Welcome to CK Nicola and congrats on your baby girl. You have found a great site here for support and answers to all sorts of questions. Good luck at your appointment, and be sure to keep us posted.

Zara's mum
06-18-2009, 08:11 AM
Welcome to craniokids Nicola, looking forward to getting to know you... let us know how the apointment goes x

*jules*
06-19-2009, 04:17 AM
hi and welcome. congrats on the birth of you daughter. can't wait to get to know you better :)