Cranio made front cover of our local paper

[mckennasmum]

http://www.examiner.com.au/news/local/news/health/mums-join-fight-against-rare-medical-condition/1514862.aspx

I got 2 phone calls and a text message this morning asking if I'd read the paper today. I hadn't but anyway an article on cranio. Hopefully the link works. I'm going to contact the 3 mums just to let them know what we have been through as they will be dealing with the children's hospital in Melbourne. Although these 3 kids have saggital, my friends were all offended that these women thought they were the only ones going through this from Tasmania, kind of funny really! Makes me realise how much I've already spread the word of cranio. Interesting though as 3 kids in a year diagnosed in a population area of about 150,000!

[Melbourne Mummy]

Wow! Just reading it now, if any of them want to talk to a saggi mum who's been through it in Melb, feel free to give them my details.

[mckennasmum]

thx, was thinking of you after reading it. I just sent an email to the paper so will be interesting to hear back from them!

[dannlark]

Oh, WOW!!! I hope you can get them the info about CK! It's such a relief to contact others that have been there, done that... Keep us posted!!

[charliesmummy]

Wow that's amazing. Send them to CK x

[kking]

YAY for more awareness!

[Josephsmommy]

:yipee

[Christina's_Mommy]

It wouldn't let me read it. :( Yea on the awareness!!!

[Zara's mum]

I can't read it either :(

[mckennasmum]

probably because its old news now! Anyway 3 kids in our area all between 8 and 12 months have sagittal cranio, they have all found each other and were getting the word out there and looking for other kids that may have cranio as well! I still haven't heard back from the paper so that reminds me, I better put in another call to get in touch with these mums!