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View Full Version : Our Stories


  1. Share your journey
  2. Emily's Story- Right Coronal Part 1
  3. Matthew's Story
  4. Vances journey- metopic
  5. Austin's Journey - Rt. Coronal
  6. Bryson's story
  7. Dillon's journey (multiple suture, syndromatic)
  8. Being born with Craniosynotosis
  9. Jackson's journey
  10. Jacks story now aged 3!!
  11. Bettys Journey
  12. Thank you
  13. Our journey with David
  14. Merecedes Story (Sagittal Cranio)
  15. Deaglan's Story (Sagittal)
  16. Tamzie's Story
  17. D-day +4 months
  18. David's Story (metopic)
  19. Tyler&Jakob's story (saggital Babies)
  20. Kaitlynn's Story - Saggital
  21. Gavin's Story - Saggital
  22. Emma Claire
  23. My daughter Mackenzie, with Metopic...
  24. Autumn Marie
  25. Madison's story...so far
  26. Never left off
  27. Azia-lynn's Story - Metopic Cranio
  28. Bradley's Story
  29. Rose is home !!
  30. Quintin's metopic story
  31. Devan's "metopic adventure"...
  32. Justin's Story (Lambdoidal)
  33. Libby's Story
  34. little roses story (sagittal)
  35. Sara Grace's Story
  36. Mikayla's Story... Bi-coronal...
  37. Wyatt - Metopic
  38. We are kinda new to this!
  39. Lily's story
  40. zachary born with metopic craniosynostosis on 10-26-07
  41. Laura - the story so far
  42. Katie's Story-Bi-Coronal
  43. Jackson's story
  44. Braelyn's Story
  45. hi
  46. Hayden-metopic, Born 8-30-07, Surgery 4-08-08 @ Medical City-Dallas w/ Dr Barcelos
  47. Mom of 2 Cranio Boys
  48. Mom of 2 Cranio Boys - 2nd Boy
  49. Alaina's Story So Far
  50. Julianna's Story
  51. montage of Grace
  52. Leah's story
  53. Claire's Story
  54. Aidan's Story-So far
  55. Jack's Journey
  56. Max's Awareness Video
  57. Julian: Sagital, Both Coronals and Metopic
  58. Addison's Video Montage after surgery!
  59. Stijn's story
  60. Zachary's montage
  61. Nicholas' montage
  62. Hayden's Montage
  63. Owen's Story
  64. Madelyn... so far
  65. Leonardo's story
  66. FINALLY, Kendall's Montage
  67. You Tube Success
  68. Kalem's story and montage
  69. Andrew's story thus far
  70. Taylor's story more surgeries to go @ 3yrs
  71. Jake's Story
  72. Max's very long story
  73. Brian's Story
  74. Carson's Cranio Story
  75. Seth's story
  76. Tristan's Journey....
  77. Newly diagnosed - sagittal
  78. Alexa Lena's Craniosynostosis Journey
  79. Ian's Metopic Journey
  80. Blake's Metopic Cranio Story
  81. Twins with Craniosynostosis
  82. André's story!
  83. Isaac's Story (very long)
  84. Wolfy's surgery story
  85. Victorias story - coronal synostosis
  86. Abby's story - right coronal
  87. Henry's journey has begun - 9/2/08
  88. Jonathan's Story
  89. kobe's story....so far
  90. Mallory's 2nd Surgery (Sagittal)
  91. Confessions of a Post-Op Metopic Mom
  92. Matthew's story - bilateral coronal
  93. Haydens Story-Left Coronal Synstosis
  94. The Cole twins story
  95. kobe is on the other side:)
  96. My Story and my Dad's story
  97. Liam's Bicoronal Synostosis Journey
  98. Our Answered Prayer - Jackson's Story
  99. Carrie & family: Our Story
  100. Ben just had his surgery
  101. Our journey with Madi and Austin
  102. Lilah's Cranio Journey - Left Coronal Synostosis
  103. Laura's story (sagittal, John Radcliffe, UK)
  104. Caleb (Sagital)
  105. Veteran Mum
  106. Our cranio journey
  107. Oscar's Story so far - Partial Metopic
  108. Bastien's story (Metopic in Michigan)
  109. Adam's Story
  110. Astrid´s journey so far...
  111. Layne's Sagital Story
  112. James Journey so far.....
  113. UPDATE ON New York Parents to Metopic Carnio Angel
  114. Andrew's montage... finally
  115. Sanders story
  116. Alex
  117. Grace's Montage
  118. Addison's Gramma wants to thank you all
  119. Jay's Journey
  120. Audrey's Story
  121. Colin's Sagittal Journey
  122. Elijah's Story
  123. Jasper's story, lamdoid and left coronal
  124. Isabella's story
  125. Makaylas Story (Rt Lambdoid)
  126. Santiago's Story - Rt. Coronal
  127. Hailey's Left Coronal Cranio Journey
  128. Findlay's Metopic Story
  129. Our First Doctor's appointment
  130. Logan's Story- A mild metopic that had issues
  131. On the other side after saggital surgery!!
  132. Jacob's Journey
  133. Eleanor's Montage
  134. Derek's Story
  135. Audrey's Update - Good News!!
  136. Staph After Sagittal Surgery
  137. New to board--My son's story
  138. Caleb's Lambdoid Synostosis and Torticollis
  139. Elizabeth's story and surgery, sagittal.
  140. Keidan Jude- metopic cranio
  141. Lennon's Story - ? Mild ? Metopic Cranio
  142. Levi's Story (Metopic Cranio)
  143. Devon needs another surgery :(
  144. Sophia's Story
  145. Ben's Sagittal Story- ONE YEAR later!
  146. Austin's Journey..
  147. Mike & Shelley
  148. Wolfy's sagittal story - over a year later
  149. Owen and his journey.
  150. Adam's Story
  151. Zara's story......
  152. Ralf, born with craniosynostose
  153. Leigha's Story
  154. Owen's story
  155. Kennedy's journey
  156. Nick's Cranio Journey - The Video
  157. Bastien's Metopic Video
  158. Our journey with our little man
  159. our saggy surgery story
  160. Ashlyn's Story
  161. Brandon's story
  162. Nathan's montage
  163. Liam's Story
  164. Abby's story
  165. simons metopic story
  166. Elijah's Story
  167. Josiah's Story-Sagittal corrected at 3 years old
  168. Julia's surgery
  169. Zack's Journey
  170. Maceyn's Story.. (so far)
  171. Charlie's Metopic Journey
  172. Zach's Coronal Adventure
  173. Matty's story
  174. The Berriault Story
  175. Silvana's one week post op. We are on the other side!!
  176. The rest of Ashlyn's Story
  177. Sagittal Story
  178. My story..I have Craniosynostosis and I'm an adult
  179. Brendan's Metopic story
  180. Mariyah's story
  181. Eleanor's Metopic Story
  182. our surgery story
  183. Millie's ongoing surgery
  184. Lucas
  185. kennedy is in the first stages of her story.....
  186. Baby Kennedys Findings
  187. Mikey- metopic
  188. Point A to Point B: Our Imperfect story
  189. Ciro's surgery
  190. sweet adeline cecilia blog
  191. Sagittal synostosis
  192. Grayson's Story
  193. ashwee's story
  194. Baby Ryan's Story
  195. My Uni-Coronal Babe
  196. Rebecca's sagittal story
  197. Ryne's Story
  198. Collyns' Story
  199. Blog: Ava's Journey
  200. Aidan's Story
  201. Layne's journey updated
  202. Ava's Journey
  203. Update on Andrew
  204. Cole's sagittal
  205. Isabelles story
  206. Maria's story
  207. Audrey's bi-coronal journey-the long story
  208. Coda's story
  209. AJ's story.......finally:)
  210. Thomas' story
  211. One year anniversary!
  212. Two year cranio-versary
  213. Elliott’s metopic story
  214. Samantha's metopic journey in a nutshell (video)
  215. a mild metopic cranio & positional plagio story
  216. Patrick Xavier's story
  217. EXTREMELY overdue(Sorry!): Kayla's story
  218. Monkey's Mild Metopic Story (CCMC)
  219. Michelle and Jesse's Journey!!!
  220. 2/3 Of My Children Have Cranio Now (help?)
  221. Misdiagnosed....
  222. Our Journey
  223. Nate Jr Journey
  224. Henry's story!
  225. Raphael's story - Sagittal Cranio
  226. Carters Story In NS
  227. Kadence -a wait and see story
  228. Our Metopic Endoscopic Experience
  229. Metopic Post operative 2 years 8 Months
  230. Nolan (Thinking out loud...)
  231. Prayer Request
  232. Aaron - Metopic Synostosis
  233. Sydney's Sagittal Story
  234. Lucas and his metopic story
  235. Zachary - 7 Years Post-Op
  236. Bicoronal - surgery on July 18
  237. Our Story So far
  238. Miss Journey Catherine's Story
  239. Spring surgery for sagittal cranio
  240. I feel like I have been here before..
  241. Jacob's Story
  242. Transitioning to blogs