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View Full Version : Our Stories


  1. Share your journey
  2. Emily's Story- Right Coronal Part 1
  3. Matthew's Story
  4. Vances journey- metopic
  5. Austin's Journey - Rt. Coronal
  6. Bryson's story
  7. Dillon's journey (multiple suture, syndromatic)
  8. Jackson's journey
  9. Jacks story now aged 3!!
  10. Bettys Journey
  11. Thank you
  12. Our journey with David
  13. Merecedes Story (Sagittal Cranio)
  14. Deaglan's Story (Sagittal)
  15. Tamzie's Story
  16. D-day +4 months
  17. David's Story (metopic)
  18. Tyler&Jakob's story (saggital Babies)
  19. Kaitlynn's Story - Saggital
  20. Gavin's Story - Saggital
  21. Emma Claire
  22. My daughter Mackenzie, with Metopic...
  23. Autumn Marie
  24. Madison's story...so far
  25. Never left off
  26. Azia-lynn's Story - Metopic Cranio
  27. Bradley's Story
  28. Rose is home !!
  29. Quintin's metopic story
  30. Devan's "metopic adventure"...
  31. Justin's Story (Lambdoidal)
  32. Libby's Story
  33. little roses story (sagittal)
  34. Sara Grace's Story
  35. Mikayla's Story... Bi-coronal...
  36. Wyatt - Metopic
  37. We are kinda new to this!
  38. Lily's story
  39. zachary born with metopic craniosynostosis on 10-26-07
  40. Laura - the story so far
  41. Katie's Story-Bi-Coronal
  42. Jackson's story
  43. Braelyn's Story
  44. hi
  45. Hayden-metopic, Born 8-30-07, Surgery 4-08-08 @ Medical City-Dallas w/ Dr Barcelos
  46. Mom of 2 Cranio Boys
  47. Mom of 2 Cranio Boys - 2nd Boy
  48. Alaina's Story So Far
  49. Julianna's Story
  50. montage of Grace
  51. Leah's story
  52. Claire's Story
  53. Aidan's Story-So far
  54. Jack's Journey
  55. Max's Awareness Video
  56. Julian: Sagital, Both Coronals and Metopic
  57. Addison's Video Montage after surgery!
  58. Stijn's story
  59. Zachary's montage
  60. Nicholas' montage
  61. Hayden's Montage
  62. Owen's Story
  63. Madelyn... so far
  64. Leonardo's story
  65. FINALLY, Kendall's Montage
  66. You Tube Success
  67. Kalem's story and montage
  68. Andrew's story thus far
  69. Taylor's story more surgeries to go @ 3yrs
  70. Jake's Story
  71. Max's very long story
  72. Brian's Story
  73. Carson's Cranio Story
  74. Seth's story
  75. Tristan's Journey....
  76. Newly diagnosed - sagittal
  77. Alexa Lena's Craniosynostosis Journey
  78. Ian's Metopic Journey
  79. Blake's Metopic Cranio Story
  80. Twins with Craniosynostosis
  81. André's story!
  82. Isaac's Story (very long)
  83. Wolfy's surgery story
  84. Victorias story - coronal synostosis
  85. Abby's story - right coronal
  86. Henry's journey has begun - 9/2/08
  87. Jonathan's Story
  88. kobe's story....so far
  89. Mallory's 2nd Surgery (Sagittal)
  90. Confessions of a Post-Op Metopic Mom
  91. Matthew's story - bilateral coronal
  92. Haydens Story-Left Coronal Synstosis
  93. The Cole twins story
  94. kobe is on the other side:)
  95. My Story and my Dad's story
  96. Liam's Bicoronal Synostosis Journey
  97. Our Answered Prayer - Jackson's Story
  98. Carrie & family: Our Story
  99. Ben just had his surgery
  100. Our journey with Madi and Austin
  101. Lilah's Cranio Journey - Left Coronal Synostosis
  102. Laura's story (sagittal, John Radcliffe, UK)
  103. Caleb (Sagital)
  104. Veteran Mum
  105. Our cranio journey
  106. Oscar's Story so far - Partial Metopic
  107. Bastien's story (Metopic in Michigan)
  108. Adam's Story
  109. Astrid´s journey so far...
  110. Layne's Sagital Story
  111. James Journey so far.....
  112. UPDATE ON New York Parents to Metopic Carnio Angel
  113. Andrew's montage... finally
  114. Sanders story
  115. Alex
  116. Grace's Montage
  117. Addison's Gramma wants to thank you all
  118. Jay's Journey
  119. Audrey's Story
  120. Colin's Sagittal Journey
  121. Elijah's Story
  122. Jasper's story, lamdoid and left coronal
  123. Isabella's story
  124. Makaylas Story (Rt Lambdoid)
  125. Santiago's Story - Rt. Coronal
  126. Hailey's Left Coronal Cranio Journey
  127. Findlay's Metopic Story
  128. Our First Doctor's appointment
  129. Logan's Story- A mild metopic that had issues
  130. On the other side after saggital surgery!!
  131. Jacob's Journey
  132. Eleanor's Montage
  133. Derek's Story
  134. Audrey's Update - Good News!!
  135. Staph After Sagittal Surgery
  136. New to board--My son's story
  137. Caleb's Lambdoid Synostosis and Torticollis
  138. Elizabeth's story and surgery, sagittal.
  139. Keidan Jude- metopic cranio
  140. Lennon's Story - ? Mild ? Metopic Cranio
  141. Levi's Story (Metopic Cranio)
  142. Devon needs another surgery :(
  143. Sophia's Story
  144. Ben's Sagittal Story- ONE YEAR later!
  145. Austin's Journey..
  146. Mike & Shelley
  147. Wolfy's sagittal story - over a year later
  148. Owen and his journey.
  149. Adam's Story
  150. Zara's story......
  151. Ralf, born with craniosynostose
  152. Leigha's Story
  153. Owen's story
  154. Kennedy's journey
  155. Nick's Cranio Journey - The Video
  156. Bastien's Metopic Video
  157. Our journey with our little man
  158. our saggy surgery story
  159. Ashlyn's Story
  160. Brandon's story
  161. Nathan's montage
  162. Liam's Story
  163. Abby's story
  164. simons metopic story
  165. Elijah's Story
  166. Josiah's Story-Sagittal corrected at 3 years old
  167. Julia's surgery
  168. Zack's Journey
  169. Maceyn's Story.. (so far)
  170. Charlie's Metopic Journey
  171. Zach's Coronal Adventure
  172. Matty's story
  173. The Berriault Story
  174. Silvana's one week post op. We are on the other side!!
  175. The rest of Ashlyn's Story
  176. Sagittal Story
  177. My story..I have Craniosynostosis and I'm an adult
  178. Brendan's Metopic story
  179. Mariyah's story
  180. Eleanor's Metopic Story
  181. Millie's ongoing surgery
  182. Lucas
  183. kennedy is in the first stages of her story.....
  184. Baby Kennedys Findings
  185. Mikey- metopic
  186. Point A to Point B: Our Imperfect story
  187. Ciro's surgery
  188. sweet adeline cecilia blog
  189. Sagittal synostosis
  190. Grayson's Story
  191. ashwee's story
  192. Baby Ryan's Story
  193. My Uni-Coronal Babe
  194. Rebecca's sagittal story
  195. Ryne's Story
  196. Collyns' Story
  197. Blog: Ava's Journey
  198. Aidan's Story
  199. Layne's journey updated
  200. Ava's Journey
  201. Update on Andrew
  202. Cole's sagittal
  203. Isabelles story
  204. Maria's story
  205. Coda's story
  206. AJ's story.......finally:)
  207. Thomas' story
  208. One year anniversary!
  209. Two year cranio-versary
  210. Elliott’s metopic story
  211. Samantha's metopic journey in a nutshell (video)
  212. a mild metopic cranio & positional plagio story
  213. Patrick Xavier's story
  214. EXTREMELY overdue(Sorry!): Kayla's story
  215. Monkey's Mild Metopic Story (CCMC)
  216. Michelle and Jesse's Journey!!!
  217. 2/3 Of My Children Have Cranio Now (help?)
  218. Misdiagnosed....
  219. Our Journey
  220. Nate Jr Journey
  221. Henry's story!
  222. Raphael's story - Sagittal Cranio
  223. Carters Story In NS
  224. Kadence -a wait and see story
  225. Our Metopic Endoscopic Experience
  226. Metopic Post operative 2 years 8 Months
  227. Nolan (Thinking out loud...)
  228. Prayer Request
  229. Aaron - Metopic Synostosis
  230. Sydney's Sagittal Story
  231. Lucas and his metopic story
  232. Zachary - 7 Years Post-Op
  233. Bicoronal - surgery on July 18
  234. Our Story So far
  235. Miss Journey Catherine's Story
  236. Spring surgery for sagittal cranio
  237. I feel like I have been here before..
  238. Jacob's Story
  239. Transitioning to blogs