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View Full Version : Our Stories


  1. Share your journey
  2. Emily's Story- Right Coronal Part 1
  3. Matthew's Story
  4. Vances journey- metopic
  5. Austin's Journey - Rt. Coronal
  6. Bryson's story
  7. Dillon's journey (multiple suture, syndromatic)
  8. Being born with Craniosynotosis
  9. Jackson's journey
  10. Jacks story now aged 3!!
  11. Bettys Journey
  12. Thank you
  13. Our journey with David
  14. Fiona's Story (Metopic)
  15. Merecedes Story (Sagittal Cranio)
  16. Deaglan's Story (Sagittal)
  17. Tamzie's Story
  18. D-day +4 months
  19. David's Story (metopic)
  20. Tyler&Jakob's story (saggital Babies)
  21. Kaitlynn's Story - Saggital
  22. Gavin's Story - Saggital
  23. Emma Claire
  24. My daughter Mackenzie, with Metopic...
  25. Autumn Marie
  26. Madison's story...so far
  27. Never left off
  28. Azia-lynn's Story - Metopic Cranio
  29. Bradley's Story
  30. Rose is home !!
  31. Quintin's metopic story
  32. Devan's "metopic adventure"...
  33. Justin's Story (Lambdoidal)
  34. Libby's Story
  35. little roses story (sagittal)
  36. Sara Grace's Story
  37. Mikayla's Story... Bi-coronal...
  38. Wyatt - Metopic
  39. We are kinda new to this!
  40. Lily's story
  41. zachary born with metopic craniosynostosis on 10-26-07
  42. Laura - the story so far
  43. Katie's Story-Bi-Coronal
  44. Jackson's story
  45. Braelyn's Story
  46. hi
  47. Hayden-metopic, Born 8-30-07, Surgery 4-08-08 @ Medical City-Dallas w/ Dr Barcelos
  48. Mom of 2 Cranio Boys
  49. Mom of 2 Cranio Boys - 2nd Boy
  50. Alaina's Story So Far
  51. Julianna's Story
  52. montage of Grace
  53. Leah's story
  54. Claire's Story
  55. Aidan's Story-So far
  56. Jack's Journey
  57. Bradley's Bilateral Coronal Cranio Journey...
  58. Max's Awareness Video
  59. Julian: Sagital, Both Coronals and Metopic
  60. Addison's Video Montage after surgery!
  61. Stijn's story
  62. Zachary's montage
  63. Nicholas' montage
  64. Hayden's Montage
  65. Owen's Story
  66. Madelyn... so far
  67. Leonardo's story
  68. FINALLY, Kendall's Montage
  69. You Tube Success
  70. Kalem's story and montage
  71. Andrew's story thus far
  72. Taylor's story more surgeries to go @ 3yrs
  73. Jake's Story
  74. Max's very long story
  75. Brian's Story
  76. Carson's Cranio Story
  77. Seth's story
  78. Tristan's Journey....
  79. Newly diagnosed - sagittal
  80. Alexa Lena's Craniosynostosis Journey
  81. Ian's Metopic Journey
  82. Blake's Metopic Cranio Story
  83. Twins with Craniosynostosis
  84. André's story!
  85. Isaac's Story (very long)
  86. Wolfy's surgery story
  87. Victorias story - coronal synostosis
  88. Abby's story - right coronal
  89. Henry's journey has begun - 9/2/08
  90. Jonathan's Story
  91. kobe's story....so far
  92. Mallory's 2nd Surgery (Sagittal)
  93. Confessions of a Post-Op Metopic Mom
  94. Matthew's story - bilateral coronal
  95. Haydens Story-Left Coronal Synstosis
  96. The Cole twins story
  97. kobe is on the other side:)
  98. My Story and my Dad's story
  99. Liam's Bicoronal Synostosis Journey
  100. Our Answered Prayer - Jackson's Story
  101. Carrie & family: Our Story
  102. Ben just had his surgery
  103. Our journey with Madi and Austin
  104. Lilah's Cranio Journey - Left Coronal Synostosis
  105. Laura's story (sagittal, John Radcliffe, UK)
  106. Caleb (Sagital)
  107. Veteran Mum
  108. Our cranio journey
  109. Oscar's Story so far - Partial Metopic
  110. Bastien's story (Metopic in Michigan)
  111. Adam's Story
  112. Astrid´s journey so far...
  113. Layne's Sagital Story
  114. James Journey so far.....
  115. UPDATE ON New York Parents to Metopic Carnio Angel
  116. Andrew's montage... finally
  117. Sanders story
  118. Alex
  119. Grace's Montage
  120. Addison's Gramma wants to thank you all
  121. Jay's Journey
  122. Audrey's Story
  123. Colin's Sagittal Journey
  124. Elijah's Story
  125. Jasper's story, lamdoid and left coronal
  126. Isabella's story
  127. Makaylas Story (Rt Lambdoid)
  128. Santiago's Story - Rt. Coronal
  129. Hailey's Left Coronal Cranio Journey
  130. Findlay's Metopic Story
  131. Our First Doctor's appointment
  132. Logan's Story- A mild metopic that had issues
  133. On the other side after saggital surgery!!
  134. Jacob's Journey
  135. Eleanor's Montage
  136. Derek's Story
  137. Audrey's Update - Good News!!
  138. Staph After Sagittal Surgery
  139. New to board--My son's story
  140. Caleb's Lambdoid Synostosis and Torticollis
  141. Elizabeth's story and surgery, sagittal.
  142. Keidan Jude- metopic cranio
  143. Lennon's Story - ? Mild ? Metopic Cranio
  144. Levi's Story (Metopic Cranio)
  145. Devon needs another surgery :(
  146. Sophia's Story
  147. Ben's Sagittal Story- ONE YEAR later!
  148. Austin's Journey..
  149. Mike & Shelley
  150. Wolfy's sagittal story - over a year later
  151. Owen and his journey.
  152. Adam's Story
  153. Zara's story......
  154. Ralf, born with craniosynostose
  155. Leigha's Story
  156. Owen's story
  157. Kennedy's journey
  158. Nick's Cranio Journey - The Video
  159. Bastien's Metopic Video
  160. Our journey with our little man
  161. our saggy surgery story
  162. Ashlyn's Story
  163. Brandon's story
  164. Nathan's montage
  165. Liam's Story
  166. Abby's story
  167. simons metopic story
  168. Elijah's Story
  169. Josiah's Story-Sagittal corrected at 3 years old
  170. Julia's surgery
  171. Zack's Journey
  172. Maceyn's Story.. (so far)
  173. Charlie's Metopic Journey
  174. Zach's Coronal Adventure
  175. Matty's story
  176. The Berriault Story
  177. Silvana's one week post op. We are on the other side!!
  178. The rest of Ashlyn's Story
  179. Sagittal Story