- Helpul Links
- Saethre-Chotzen syndrome.. passing it on to your kids.
- Looks like testing might finally happen!
- Yay for genetic counseling!
- Trying to find information
- Genetic testing results... sort of.
- I just got word..
- C Syndrome?
- Now for the wait...
- Reaching a decision... long update!
- Good or Bad??
- The results are in
- general syndrome question
- Results of Genetic Tests
- Long overdue update!
- Pfeiffer Syndrome Article
- Hereditary?
- Saethre-Chotzen syndrome & Ptosis
- Amanda's surgery
- Crouszon Syndrome
- Apert syndrome article
- How do you know?
- If it nots one thing its another....
- Saethre-Chotzen-eye surgery
- Had Genetics Appt
- What are the chances?
- Syndrome Questions
- Saethre-Crotzen support group
- Ptosis repair problems
- Syndromic?
- Unique little girl!
- Syndromes w/ Brain Tumors
- Need Information!!!
- Families in So. Cal, Syndromes
- Fetal Valproate Syndrome
- webbed toes?
- Article written by an ENT on cranio syndromes
- Muenke or Crouzon Syndrome
- Syndome Inquiry
- The good with the bad
- Don't Know Yet
- Craniofacial Syndromes
- mental delay's
- Anyone familiar with Muenke Syndrome?
- Genetisist called today
- Happy Holidays
- We have a syndrome...
- Saethre-Choetzen with only one suture fused?
- "Strongly suggests," not "is always"
- Any mommy's with info?
- Silly question?
- Not even 2 yet and were having ANOTHER Ptosis repair:(
- Chiari Brain Malformation
- Good Luck Tomorrow Holly
- Well....
- My friend is adopting...
- Second Hearing Test/Muenke Syndrome
- Question
- Update FINALLY!
- crouzons?
- Am I the only one?
- Jenni, CS syndrome....
- Pics from our ptosis repair
- Pics from our ptosis repair (not for the faint of heart)
- Am a little worried now
- Muenke Syndrome
- a family affair?
- Growing clavicles? (saethre-chotzen)
- Chromosome 15 / Tetrasomy 15q 25 Syndrome
- Questions about Saethre -Chotzen syndrome
- Syndrome Characteristics
- Attempt #2 Syndrome Features
- Rejection of facia in ptosis repair?
- I have muenke syndrome...
- hi to all
- Chromosome 16...
- My daughter has Saethre-Chotzen...
- closed soft spot
- small fonatanelle
- metopic syndroms?
- Hypermobility?
- Jacobsen Syndrome
- hypophosphatasia? and chronic cough question
- Metopic Cranio and Corpus Callosum
- Hand/finger deformity??
- Pectus - sunken chest???
- Anybody doing/have done IVF?
- syndactyly
- Muenke. Do you Know anything about it?
- Mosaic Trisomy 9
- what is bicoronal?
- Could it be syndromic?
- Multiple sutures and syndromes
- Is this a syndrome?
- Hoping for answers...
- Information for those with Muenke
- Could it be a syndrome?
- "Mercedes Benz" Syndrome
- Chromosomal abnormalities Metopic...
- msx-2 syndrome
- Has anyone seen this?
- unique and rare chromosome issues
- Polydacytly
- Loeys-Dietz Syndrome
- seizures
- Genetic Testing
- Pediatrician recommending genetic testing
- Saethre-Chotzen
- syndrome features
- Muenke and hearing loss?
- Cristóvão´s genetic testing
- multiple cranio - no syndrome
- Aspergers syndrome
- Brandon's genetic testing results
- Smith-Magenis Syndrome
- Waiting for results
- genetic testing question
- honest please!!
- Pfeiffer Syndrome?
- Cristóvão´s genetic results
- Metopic Cranio/Hydrocephalus/Omphalocele
- RING 9, any info would be appreciated..
- what to do?
- Autism or just delayed?
- Fiona is having genetic testing done
- When to be tested?
- Attention: Families with Muenke Syndrome
- im the new girl...pfieffer baby
- Genetic Testing results - 5p duplication?
- Help me out please.
- Craniofacial Syndromes with Craniosynostosis
- Craniofrontonasal Syndrome
- Muenke's Syndrome
- Jackson-Weiss syndrome
- Kabuki Syndrome
- scared about syndrome
- Results from some genetic testing /What's next?
- Saethre-Chotzen Mama new to Cranio kids
- has anyone had an array CGH test done?
- Testing.
- New coronal cranio diagnosis with likely syndrome
- Could she have a syndrome?
- new here with questions
- Lambdoid + Hip Dysplasia = ???
- Reece's Rainbow Syndrome kids need advocates
- Muenke and epilepsy
- Question about cranio and syndromes
- Article: Genetic Factor for Non-Syndromic Cranio
- Two More Cranio Genes Recently Discovered
- Newbie with questions :)
- Muenke and more surgeries
- ? Syndrome - hubby with webbed toes