PDA

View Full Version : Craniosynostosis Chat



Pages : 1 2 3 4 5 6 7 8 [9] 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24

  1. We finally have a NS appointment!
  2. Finally Diagnosis Confirmed we have a wee Metopic Man
  3. Florence is one year out!
  4. Diagnosis Confirmed...All Freaked Out
  5. What is this? Worried.
  6. Kams appointment with Dr. Fearon and Dr. Honeycutt
  7. Do you have a blog?
  8. Bad night w/ Lily...hoping to get some answers
  9. What Now!
  10. SUPPORT/ VOTE for my cranio kid
  11. Here it comes...
  12. Question about bumps/lumps
  13. Anyone read May 2009 issue of Parents??
  14. Did any of your children with a metopic ridge have a head that measured very large
  15. cyanosis after surgery?
  16. Is this normal????
  17. Randwick Childrens Hospital and accomodation
  18. ridge that is not cranio?
  19. Calling all headpickers!
  20. Does this make sense?
  21. Hospital Support Groups
  22. Depakote
  23. does your Sagittal have a square forehead?
  24. Dr. Fearon's office moved Hurley's appt. up to April 20th instead of May 11th.
  25. Sophia is on the other side!!!
  26. Jasper's Helmet!
  27. Keeping them healthy pre-op
  28. Yes, again about the soft spots!!
  29. Cranial Vault Reconstruction and Helmet Therapy
  30. surgery in the near future
  31. "Sagittal Stenosis" Spring cranioplasty
  32. Surgery on wednesday!!!
  33. my poor little man
  34. Questoins about metopic-ness!
  35. Questions about metopic-ness!
  36. question about the metopic suture
  37. Just wondering how common it is to need a 2nd surgery to fix sagital synostosis
  38. Dissolving sutures??
  39. Should I be worried?
  40. Countdown to surgery day
  41. no anterior fontanelle
  42. epicanthal fold? need info-
  43. Am i being silly
  44. bi coronal moms - update on sophie
  45. Follow-up CT scan
  46. Could it be lambdoid?? Opinions please.
  47. Questions for the Surgeons
  48. 7 month Sagittal. anyone had Endoscopic at this late stage?
  49. 3-D Ultrasound picture
  50. honest opinions please...
  51. Strabismus Questions
  52. Kam's CT Scan 2morrow
  53. How common is Cranio really?
  54. Update from our NS appointment
  55. still confused
  56. Update on Neurologist and Geneticist appt
  57. How are your husbands/partners dealing?
  58. Just checking in...I MISS ALL OF YOU!
  59. who lives in Australia?
  60. Surgery date and freaking out!
  61. Metopic Headpickers
  62. surgery date
  63. Saw the surgeons today and did not get the best news...
  64. i hate my insurance company
  65. What do you think??
  66. Calling all Boston Children's families
  67. Strip Craniectomy?
  68. Kamdyns Ct results
  69. We're on the other side!!!
  70. Wyatt's check Up!
  71. anybody go to oklahoma city for surgery??
  72. sleep after surgery
  73. Before & After Photos of Coronals?
  74. Well, crud...
  75. is this a cranio kid thing?
  76. A question!
  77. Small Soft Spot
  78. Surgery on Monday (with luck!)
  79. Max has a cold, surgery on Friday
  80. Date for Spring removal already
  81. Will my baby change?
  82. how do they diagnose mild metatopic
  83. Keep Voting We made it to the finals!
  84. response from Dr. Fearon
  85. DH's family DOES have a metopic past!!
  86. Astrid's recovery!
  87. calling all Metopic mummys
  88. Metopic and head rubbing
  89. UK mums times off work for surgery?
  90. Abbie, Julie, Bee, Hazel and Jacqui
  91. Sleeping and getting ready for surgery?
  92. Breastfeeding and surgery?
  93. We're home......again!!
  94. Free Button-up Shirts (boy's) for surgery recovery
  95. craniosacral therapy
  96. Iron supplements?
  97. Another post-op breastfeeding question- for babies with eating troubles
  98. Is it possible to ditch your NS post-op?
  99. We got our appt!......?
  100. Question for mums of sagittals, especially mums with other children too
  101. Newbie - metopic synostosis - advice needed
  102. Now we are mild metopic! WTF?
  103. Update: Khalil's CT Scan Pictures
  104. For those that had surgery for Metopic...
  105. BAD appointment
  106. Another shock. We are in the dark again!
  107. question about swelling
  108. Metopics and Coronal Suture Growth
  109. Older children going through surgery?
  110. I don't think I have Thanked You.....
  111. When did your child attend daycare post op?
  112. Strabismus & Coronal Synostosis
  113. Premmies?
  114. Raeleen's pediactric opthalmologist appointment was today!
  115. Just wondering
  116. UK mummys
  117. After surgery - back to work
  118. Hypotelorism and Metopic
  119. Ear infections, tonsils and snoring
  120. I Pounced on some poor lady
  121. Metopic Adult, still with ridge...
  122. Long time no see... and my other oldest son has cranio too
  123. Best Age for Metopic Surgery (CVR/FOA)
  124. How reliable is a fundoscopy when checking for ICP?
  125. Metopic Cranio-- what do you think now?
  126. Update on Noah, Metopic advice needed
  127. seeking information about sagittal plus lambdoid cranio in non-syndromic child
  128. Jason 8 months - post op
  129. Isnt it simple?
  130. Question about FOA
  131. New here and scared.. My baby just diagnosed w/ lambdoid synostosis
  132. Auroras New Surgery Date
  133. Evelynn's xrays & photos
  134. Surgery on Wednesday
  135. I posted in the wrong spot....
  136. Back in the hospital
  137. Lambdoid?
  138. Little update
  139. lost and confuse
  140. Kavin's surgery pics
  141. Kavon pics
  142. Finally
  143. Speech Delay Test Results-Any Other's With Experience?
  144. Happy to announce...
  145. Can I ask the status of the "soft spot" on your cranio kid....
  146. My first adult cranio spotting!
  147. Loose wiring
  148. Aurora is on the other side now.
  149. Not sure how I feel???
  150. Finally discharged!
  151. Hard to believe...
  152. ? about Metopic foreheads
  153. New pics
  154. 1 More Week!!!!
  155. Update and Question...
  156. We have a surgery date!
  157. Didn't someone here use Dr Muraszko at U of M?
  158. Supplemental Healthcare for Adults?
  159. Dr Foody and Spectrum Health Hospital
  160. Hello! and new pics!
  161. 3rd surgery for Julian
  162. Teeth question (Vampire?)
  163. Wondering about the helmet
  164. Questions for the doc re: mild metopic
  165. Update on Skylar at 14mo
  166. Check out what I did!!!
  167. Update on Marcus
  168. Surgery in 2 weeks!
  169. Disability
  170. Tummy time for sagittal babies?
  171. Looking for some reassurance
  172. what would you do?
  173. May 19 appt in Chicago
  174. Zara's montage
  175. The postman has been today...
  176. I'm wearing this!!
  177. Liam's follow up!
  178. On the other side!!!
  179. Surgery Tomorrow!
  180. Heard back from Dr Fearon...? About Insurance
  181. The smartest thing we ever did...
  182. Pics of Jessica
  183. Scar?
  184. Can't concentrate at work...
  185. 2 hours before the Dr appointment
  186. Lamboid and Coronal mummy's please
  187. total calvarial remodeling
  188. Cranio synostosis
  189. Anyone have their surgery with Kaiser or at Loma Linda?
  190. Sorry girls its me again!
  191. No surgery for Elena...
  192. Worried
  193. mom needing help
  194. 3 1/2 years post op. Opinions???
  195. Carter's Update
  196. Can anyone talk to me about Dr. Wehby?
  197. We have an appointment date
  198. Could metopic ridges be genetic?
  199. first visit--how much $$?
  200. Breastfeeding after surgery
  201. Should I get a CT scan for my 2 month old? (w/pictures)
  202. Appointment tomorrow
  203. Update on Khalil's Visit w/ Dr. Cohen
  204. Seizer?!
  205. Sophie's appt at GOSH
  206. Head Pickers - Britains Got Talent Contestant
  207. Falling Post-op Help
  208. Hi-new here!
  209. Packing for Hospital and an update!
  210. Sagittal recurring after surgery
  211. does anyone get fed up with..
  212. Surgery tomorrow
  213. Bradley fell AGAIN
  214. Baby Cranio related shirts - where can I get one?
  215. Welcome to the cranio coaster
  216. pictures taken
  217. Update on first visit--Baby Payne
  218. Help, please!
  219. Ian's 21 months follow up with Ped...
  220. Join my party!
  221. Bradley's Bump
  222. In twenty years...
  223. It is finally surgery day
  224. Help with Quiz for fundraising
  225. Update on Ingrid
  226. it's official...alex is developmentally delayed
  227. question on syndromes
  228. Yay!!! Just got to the other side!!!!!!!
  229. new pictures - opinions please
  230. eye appointment
  231. Elizabeth is on the OTHER side!!
  232. I added post-op pics to my blog...
  233. runny nose
  234. Sofia is getting glasses
  235. Dr. Staffenberg in Bronx NY
  236. Add Fi-bug to the list.....
  237. Dr. Arshad Muzaffar
  238. Bio-oil for scars
  239. New album
  240. If your child has a metopic ridge with no surgery required
  241. Max has a fever, again...
  242. Migraine headaches?
  243. Sagittal: Has anyone opted against surgery
  244. We're on the other side
  245. Jessie will be 1 on Tuesday!
  246. My support person is sick, surgery tommorow!
  247. Surgery tomorrow, fever today :(
  248. Did I tell you...
  249. what have we started
  250. Ka'Von's surgery on Friday