View Full Version : Craniosynostosis Chat
- We finally have a NS appointment!
- Finally Diagnosis Confirmed we have a wee Metopic Man
- Florence is one year out!
- Diagnosis Confirmed...All Freaked Out
- What is this? Worried.
- Kams appointment with Dr. Fearon and Dr. Honeycutt
- Do you have a blog?
- Bad night w/ Lily...hoping to get some answers
- What Now!
- SUPPORT/ VOTE for my cranio kid
- Here it comes...
- Question about bumps/lumps
- Anyone read May 2009 issue of Parents??
- Did any of your children with a metopic ridge have a head that measured very large
- cyanosis after surgery?
- Is this normal????
- Randwick Childrens Hospital and accomodation
- ridge that is not cranio?
- Calling all headpickers!
- Does this make sense?
- Hospital Support Groups
- Depakote
- does your Sagittal have a square forehead?
- Dr. Fearon's office moved Hurley's appt. up to April 20th instead of May 11th.
- Sophia is on the other side!!!
- Jasper's Helmet!
- Keeping them healthy pre-op
- Yes, again about the soft spots!!
- Cranial Vault Reconstruction and Helmet Therapy
- surgery in the near future
- "Sagittal Stenosis" Spring cranioplasty
- Surgery on wednesday!!!
- my poor little man
- Questoins about metopic-ness!
- Questions about metopic-ness!
- question about the metopic suture
- Just wondering how common it is to need a 2nd surgery to fix sagital synostosis
- Dissolving sutures??
- Should I be worried?
- Countdown to surgery day
- no anterior fontanelle
- epicanthal fold? need info-
- Am i being silly
- bi coronal moms - update on sophie
- Follow-up CT scan
- Could it be lambdoid?? Opinions please.
- Questions for the Surgeons
- 7 month Sagittal. anyone had Endoscopic at this late stage?
- 3-D Ultrasound picture
- honest opinions please...
- Strabismus Questions
- Kam's CT Scan 2morrow
- How common is Cranio really?
- Update from our NS appointment
- still confused
- Update on Neurologist and Geneticist appt
- How are your husbands/partners dealing?
- Just checking in...I MISS ALL OF YOU!
- who lives in Australia?
- Surgery date and freaking out!
- Metopic Headpickers
- surgery date
- Saw the surgeons today and did not get the best news...
- i hate my insurance company
- What do you think??
- Calling all Boston Children's families
- Strip Craniectomy?
- Kamdyns Ct results
- We're on the other side!!!
- Wyatt's check Up!
- anybody go to oklahoma city for surgery??
- sleep after surgery
- Before & After Photos of Coronals?
- Well, crud...
- is this a cranio kid thing?
- A question!
- Small Soft Spot
- Surgery on Monday (with luck!)
- Max has a cold, surgery on Friday
- Date for Spring removal already
- Will my baby change?
- how do they diagnose mild metatopic
- Keep Voting We made it to the finals!
- response from Dr. Fearon
- DH's family DOES have a metopic past!!
- Astrid's recovery!
- calling all Metopic mummys
- Metopic and head rubbing
- UK mums times off work for surgery?
- Abbie, Julie, Bee, Hazel and Jacqui
- Sleeping and getting ready for surgery?
- Breastfeeding and surgery?
- We're home......again!!
- Free Button-up Shirts (boy's) for surgery recovery
- craniosacral therapy
- Iron supplements?
- Another post-op breastfeeding question- for babies with eating troubles
- Is it possible to ditch your NS post-op?
- We got our appt!......?
- Question for mums of sagittals, especially mums with other children too
- Newbie - metopic synostosis - advice needed
- Now we are mild metopic! WTF?
- Update: Khalil's CT Scan Pictures
- For those that had surgery for Metopic...
- BAD appointment
- Another shock. We are in the dark again!
- question about swelling
- Metopics and Coronal Suture Growth
- Older children going through surgery?
- I don't think I have Thanked You.....
- When did your child attend daycare post op?
- Strabismus & Coronal Synostosis
- Premmies?
- Raeleen's pediactric opthalmologist appointment was today!
- Just wondering
- UK mummys
- After surgery - back to work
- Hypotelorism and Metopic
- Ear infections, tonsils and snoring
- I Pounced on some poor lady
- Metopic Adult, still with ridge...
- Long time no see... and my other oldest son has cranio too
- Best Age for Metopic Surgery (CVR/FOA)
- How reliable is a fundoscopy when checking for ICP?
- Metopic Cranio-- what do you think now?
- Update on Noah, Metopic advice needed
- seeking information about sagittal plus lambdoid cranio in non-syndromic child
- Jason 8 months - post op
- Isnt it simple?
- Question about FOA
- New here and scared.. My baby just diagnosed w/ lambdoid synostosis
- Auroras New Surgery Date
- Evelynn's xrays & photos
- Surgery on Wednesday
- I posted in the wrong spot....
- Back in the hospital
- Lambdoid?
- Little update
- lost and confuse
- Kavin's surgery pics
- Kavon pics
- Finally
- Speech Delay Test Results-Any Other's With Experience?
- Happy to announce...
- Can I ask the status of the "soft spot" on your cranio kid....
- My first adult cranio spotting!
- Loose wiring
- Aurora is on the other side now.
- Not sure how I feel???
- Finally discharged!
- Hard to believe...
- ? about Metopic foreheads
- New pics
- 1 More Week!!!!
- Update and Question...
- We have a surgery date!
- Didn't someone here use Dr Muraszko at U of M?
- Supplemental Healthcare for Adults?
- Dr Foody and Spectrum Health Hospital
- Hello! and new pics!
- 3rd surgery for Julian
- Teeth question (Vampire?)
- Wondering about the helmet
- Questions for the doc re: mild metopic
- Update on Skylar at 14mo
- Check out what I did!!!
- Update on Marcus
- Surgery in 2 weeks!
- Disability
- Tummy time for sagittal babies?
- Looking for some reassurance
- what would you do?
- May 19 appt in Chicago
- Zara's montage
- The postman has been today...
- I'm wearing this!!
- Liam's follow up!
- On the other side!!!
- Surgery Tomorrow!
- Heard back from Dr Fearon...? About Insurance
- The smartest thing we ever did...
- Pics of Jessica
- Scar?
- Can't concentrate at work...
- 2 hours before the Dr appointment
- Lamboid and Coronal mummy's please
- total calvarial remodeling
- Cranio synostosis
- Anyone have their surgery with Kaiser or at Loma Linda?
- Sorry girls its me again!
- No surgery for Elena...
- Worried
- mom needing help
- 3 1/2 years post op. Opinions???
- Carter's Update
- Can anyone talk to me about Dr. Wehby?
- We have an appointment date
- Could metopic ridges be genetic?
- first visit--how much $$?
- Breastfeeding after surgery
- Should I get a CT scan for my 2 month old? (w/pictures)
- Appointment tomorrow
- Update on Khalil's Visit w/ Dr. Cohen
- Seizer?!
- Sophie's appt at GOSH
- Head Pickers - Britains Got Talent Contestant
- Falling Post-op Help
- Hi-new here!
- Packing for Hospital and an update!
- Sagittal recurring after surgery
- does anyone get fed up with..
- Surgery tomorrow
- Bradley fell AGAIN
- Baby Cranio related shirts - where can I get one?
- Welcome to the cranio coaster
- pictures taken
- Update on first visit--Baby Payne
- Help, please!
- Ian's 21 months follow up with Ped...
- Join my party!
- Bradley's Bump
- In twenty years...
- It is finally surgery day
- Help with Quiz for fundraising
- Update on Ingrid
- it's official...alex is developmentally delayed
- question on syndromes
- Yay!!! Just got to the other side!!!!!!!
- new pictures - opinions please
- eye appointment
- Elizabeth is on the OTHER side!!
- I added post-op pics to my blog...
- runny nose
- Sofia is getting glasses
- Dr. Staffenberg in Bronx NY
- Add Fi-bug to the list.....
- Dr. Arshad Muzaffar
- Bio-oil for scars
- New album
- If your child has a metopic ridge with no surgery required
- Max has a fever, again...
- Migraine headaches?
- Sagittal: Has anyone opted against surgery
- We're on the other side
- Jessie will be 1 on Tuesday!
- My support person is sick, surgery tommorow!
- Surgery tomorrow, fever today :(
- Did I tell you...
- what have we started
- Ka'Von's surgery on Friday
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