View Full Version : Craniosynostosis Chat
- Update on Kristin and Xander
- could my other kid be metopic??
- stressssssing!
- This is the problem I have with pictures!!!
- First Time Post
- Adult with Sagittal Cranio Spotted...
- Update and searching for a mom...
- Would love to get your opinion
- Julianna's Appointment tomorrow
- really worried
- Silly doctors
- Nuero Appointment Tomorow
- Metopic Cranio News Article
- Craniofacial Board
- Surgery in March
- Popping back to say hello!
- Insurance appeals
- Bulging around "new soft spot"
- We get to meet Annie and Timothy in Jamaica!! WooHoo!
- update . . . confused
- ok REALLY need some opinions.. everyone
- Grace's craniofacial board
- C- section or Vag Delivery?
- Does Dwight from the Office have mild metopic cranio??
- Update on Hayden
- If you have never been to Kansas before...(pics)
- We're on the other side !!!!!!
- Great Story
- anyone else have trouble nursing their cranio baby?
- We Have a Date!
- We're on the other side!
- Xander's home and doing amazing!!
- Rohan's post-op check
- hello from Jamacia
- Amy and Cam
- 10 Months post op still gap in skull - is this normal
- we have a surgery date in March!
- Metopic ridge?
- Jay's opt apt.
- Camden update
- Appointment with the NS yesterday
- Getting Frustrated
- Endoscopy v.s. Traditional Surgical Approach
- scared...so many questions!
- Someone noticed Fi's scar today
- Lamboidal sutures..
- Dr.Fearon supporters - any Hoffman fans out there?
- Surgery date for Zachary, yeah!!!
- Pics of Jameson
- narrow temples
- Dr. Lisa David in Winston Salem
- Oregon Dr?
- Calling all sagittal mummy's!
- MySpace awareness group
- Is this a saggital ridge?
- questions to ask DR.?
- Older child/ Dr. Fearon
- better pics of Jameson and xray report
- Cvr / foa
- Georgia's appt. with Dr. David
- Years after surgery - how does it work out?
- Update on hospital appointment today
- Could a severe car accident during pregnancy cause it?
- one year ago today.....Quintin is 1 year out!!
- I was on live radio today about Zara!!!!
- What does this ridge mean?
- Makayla Pictures
- Possible Sagittal
- Two cranio questions
- I'm curious
- what is a 'ridge'?
- Comparison Pictures
- Diagnosis
- First Appt.
- disovable sutures in cranio repair, how does that work?
- extra skin around eyes of metopics?
- Not closing eyes
- new scared mommy...surgery in 2 weeks
- Post surgery - does her eye look weird???
- Questions....
- 2 week post op
- Aargh...
- Going home so fast?
- metopic, now possible lamboidal???
- Chiari Moms
- Drs. Genecov, Barcelo, Salyer
- Zachary's surgery is Tomorow
- Zara -the front cover of our local paper!!
- Knobbly head!!!
- Not So Normal Tantrums with Metopic
- 1 in 50 chance metopic baby will have one himself?
- Jaden's on a Vitamin D and Calcium supp
- Am i going mad!!!!!!!!
- Dr. Singhal
- Pictures of Kavin
- Zachary is on the Other Side Now!!!
- Finally a date
- Should I be worried
- Any Kansas City families out there go to Dr. Singhal, Dr. Hiebert, Dr. Colyer ?
- Wormian bones...huh?
- MaryCatherine had her cranial vault surgery last week
- Lots of Questions-Metopic Synostosis
- GP's are so frustrating
- Moral question about having kids knowing they may have problems.
- Awareness ribbon
- hope someone here knows...
- Narrow upper jaw and a `string` between lip and gums, normal with Metopic?
- How long til soft spots close up?
- My First Public Cranio-Siting!
- Soft spots getting bigger?!
- Adam is on the other side and doing great!!!
- Cranio Experience - Poem
- Today is March 2nd...
- Sagittal diagnosis after meeting the neurosurgeon, now on to the plastic surgeon
- Draft of insurance appeal letter-What do you think?
- Now What!
- Surgeon Appt
- Moms can't donate blood to children - new info!
- Pre-op Appointment over T-Minus 3 days now!
- We met our neurosurgeon today.....
- Orbital Rims
- Another Q
- Therapies?
- Calling all coronal mommies
- 3 cranios at one wedding?
- Reactions from friends and family
- Botox/ Early on services
- Recovery time after surgery
- Zachary's cranio check-up
- Breast feeding
- Appointment set for Thursday
- Genetic vs non genetic
- can you see any change?
- Update on Zachary since Surgery
- 6 Month Check up
- have you ever considered not telling your child she (or he) had cranio?
- Possible Saggital-- ?????
- Grumpy Cranio bubbas?!
- Answer from Dr Fearon..and more questions from me!
- excessive sweating?
- What is happening to me?
- CT scan nurse
- I cant find answers anywhere else!
- Jenna's Update
- Surgery Date for Eleanor!!!
- Timothy' surgery date
- My sons pics - Metopic?
- We have a surgery date!!!
- Makayla Questions
- Should I be disappointed with his lumpy head?
- Mirror Image
- Dr. Fearon's 6 month post op response for Ian...
- Support for Mom of Bicoronal girl
- Siblings -- how much to tell?
- can u please check out josh's pics
- Avery's Head pics.....
- wall street journal article...kids getting cranio surgery who didnt have cranio!
- hi everyone
- I feel like the Dr. is not taking me seriously
- Bi-coronal?
- Aaaaaahhhhh!!!!!
- not quite sure what to think...
- Got my reply from Dr. fearon
- Update on Bradley
- Cranio Clinic Scheduled
- Is it within "normal" to feel their sutures?
- Taking the plunge..
- Aurora's Surgery in April 2009
- So MANY questions so LITTLE answers
- Contacted Dr Fearon and got a reply
- Fianl Appointment???
- Head pics
- It was!
- Little Aussie Andrews surgery next week
- Heard back from Dr Fearon about Mikayla..
- Problems at Birmingham Children's Hospital in the news
- Insurance Company
- I am ADDICTED to Craniokids
- Now What?-New Response from Dr F..
- Posted some pics
- New to All of This - Coronal Question
- The 'before' photos - saggital
- Symptoms of ICP.....
- Eye patching
- Hi, I'm new here and have a few questions
- how long....
- 1 Year Update
- I called and I was wrong...
- Anyone with any autism experiance?
- Makayla 3-23
- NEW "birds eye view" of Kamdyn! Trigonocephaly??
- our update on joshua
- An After Surgery Poll
- Calling all members new and old...
- Chase is in surgery as we speak!!
- oh my
- What is your Cranio Type?
- MRS J - are you still online
- no appointment for months then 2 come at once - stressssssssed
- Mackenzie 14 months post op!
- Outreach Nurse coming to visit
- Head Banging/Butting....
- Andrew is "on the other side"
- Frustrated
- Rex got his "HAPPY" back!!
- hello looking for lamdoid & coronal sutures??
- Guess what................☺
- stiff leg???
- More help please!!!
- Awesome news
- falling over
- To shave or not?
- Sagittal Mommies help me out!!
- Headlines Weekend - Are You Going???
- help!!
- Post op care!?
- Aftermath of surgery - Depressed?
- Sagital Closure
- surgery today!
- Sleepless Nights!!!
- Random but VERY cool!!!
- ran into another endo mom at church
- Surgery done! *pics*
- Any other hydro Moms??
- A year ago today...
- congenital cataracts and metabolic disease
- Suture Line Question
- Saggital/scaphocephaly
- How Raeleen's 1st appointments in Chicago went
- Pre-op question
- Remind me please...
- Skull Surgery on a Crocodile
- This is what I bought for my little one
- Surgery MONDAY!
- Talk to me about life in the hospital
- Feeling Scared Today
- Sleep and positioning questions
- A cold two weeks before surgery!!!
- Pictures form Jay's 1 bday
- CT Scan Images
- Tomorrow is the big day
- We are on the other side!!!
- Concerned
- Bi-Coronal and Saggital help needed - New
- lily's walking
- Night Terrors before Surgery?
- hot topics
- Jennifer and Averys mom
- surgery postponed for Lucia
- Who was w/ you in waiting room???
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