View Full Version : Craniosynostosis Chat
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- New pictures of Leina
- Back from NS....
- FoxNews story
- of dear God he just fell
- Craniofacial Picnic at CCMC
- Kalem finally has his MRI appointment
- when will sleep be normal??
- Finally made the appt...
- Bryan's Journey
- eye problems... what next?
- Dr. Perper's Head...
- Pics of Zach. What do you think?
- Looking for pics of mild metopic kids who need(ed) surgery
- can anyone answer for me?
- Don't know what to do ??
- Proud of our hospital
- Yet another concern...maybe??
- I think I'm more emotional than I'm letting on...
- new pics
- Do you think midwives should be trained to recognise cranio
- Mild, moderate, severe?
- I have a little shadow and her name is Laura
- Did you watch TLC last night??
- 10 weeks post op!
- The "bump" on top of head after surgery
- Baby Neck exercises
- Head Sensitivity
- have you seen this on you tube regarding cranio???
- anyone heard from Spring about Libby???
- I knew I shouldn't have....
- Neurologist??
- Long time no post...
- CCA Newsletter
- Opinions Please
- Abby Update/Bi-Coronal
- opthamologist questions
- I'm noticing some changes....
- Hi - We are new to this site - have a post-op craniosynotis question
- missing everyone!!
- Severe Coronal
- Brandt's CFS appt...not sure how I'm feeling.
- What have you been told about future limitations?
- So when is it enough....
- cranio adult
- Headpickers please (warning...alot of pictures)
- did I ever show you guys this picture (Ct scan)
- new here - bicoronal synostosis question pls
- Infection
- Wonderful News
- Isaac's appt. update
- Insurance coverage question
- Panicking here!! Massive swelling
- Holy Crap!! Finally some good news!!!
- Panicking with Sam!!!
- Pocket's turbo bump - update!!
- the balls rolling
- Annual Evaluation
- Metopic with open anterior fontanelle?
- New update
- Pocket is back from Casualty - minus his bump!
- Met a cranio daddy today...
- Henry will have his surgery today.
- Medical City Dallas International Craniofacial Institute in the news...
- wait and see approach for coronal?
- Update on Henry's surgery.
- Miami Ink
- new and unsure
- My scholarship (cranio mentioned)
- CCMC Picnic
- anybody know of...
- and she has a bump on her head
- Detecting cranio in adults....
- this thursday
- Busy day tomorrow...
- What do you think
- C-Section vs. Vaginal Delivery, your opinion...
- Layla update
- NS appt. update
- Eye Appointment is tomorrow
- caden neurologist update
- Quintin 6 mos post-op! (new pics)
- Need advice - metopic, don't know if we need surgery or not!
- Question
- Leaving tomorrow...
- 1 year anniversaries
- Pocket's BUMP update!
- Does this photo look metopic?
- saggital craniosynostosis
- How to talk to a toddler
- Its been too long!
- One more picture - what do you all think?
- Saggital... and also metopic?
- question posting pics
- Off to CFS
- Waiting and changing
- Side view picture
- Mady's Post Op Info
- kind of freaking about all this!
- new worries about Quintin's head
- Forehead asymmetry?
- report from the baby's CT scan
- Can you look at pics of baby please
- Preop thoughts and worries
- Back from CFS...
- pics, is it cosmetic
- BB's in his nose?!
- Went to Noah's ped yesterday
- Mady-Plagio concern
- A story about Blood tranfusions
- Eye issues
- It's getting bigger!!
- Sports Concerns?
- Posting pictures for member Babu
- Dr. Fearon's opinion on Koa
- Anyone heard of Dr. Gruss from Seattle??
- post-op and starting school
- I hate waiting
- On the beach 2 weeks after surgery!
- You were all right - guess what the xray showed!!
- Good news
- Dont know what to do
- Anyone part of a study?
- Medical City Dallas
- Anybody enrolled in a cleft team clinic?
- Has anyone had Stelnicki/Heger from South Florida do a CVR?
- Ian's after pics coming soon...I promise!
- Still no date and it gets worse.....
- WE fianly got to talk to Dr.Fearonand got an appointment
- Prescription Diamox for ICP?
- Just out of interest - anyone's sagittal bubs born posterior?
- what are the chances???
- Jake's update
- thinking of ya today Jacqvi and Charlie
- Wth??????????
- Speaking of a small cranio world...
- Recovery from sagittal endoscopic?
- Keeson's journey continues
- Squinty eyes???
- Plates and Hardware question...
- 5 days old & surgery tomorrow!
- Alice's Latest Pictures for Headpickers!
- Ian's Metopic Journey Montage...
- Well, I did it...
- Ethan surgery update...
- Fiona's Follow up/Met Chistina and Lilah
- A few questions... Really really freaked out.
- Question about blood transfusion.
- What are the early signs of ICP?
- Puffy Soft Spots, Fever, Vomiting
- Charlotte, NC area Neurosurgeon...
- Downs' Syndrome and head abnormalities?
- Scar question
- T.V. show w/ Dr. Carson NS
- So excited and So scared!
- Appt was moved closer!
- Our next surgery, Fri 9/19
- Idea on How to Decorate Bryan's Protection Helmet
- Feeding issues - Metopic cranio
- Hey Lisa.....
- Almost 4 months post-op!
- Sarah and Wyatt
- leaving for Dallas to see DR. Fearion
- Gagging?
- not too worried, but could this relate to cranio?
- any one in the dallas area need your help
- Time off work...
- 1st appt with surgeon - q's to ask
- 1st child has cranio...next wud also inherit???
- Long time
- Deviated septum & tracheosotomy
- Dr. Neil Feldstein - Columbia - NYC
- Dr. R. Michael Scott
- Headpickers please! Am I being paranoid?
- No more helmet!
- Need help in making decison about surgery - Dr. Fearon or not?
- Jaden and Cranio...
- Flying after surgery
- Erin needs more tests
- Julianna's Update
- battle for in-network benefits
- Jocelyn saw the NS.
- CT scan question...
- poll...crying at night prior to surgery
- poll #2...did night screaming stop after surgery
- Poll: how happy are you with the results of your child's surgery?
- questions about eye issues
- Soft spots/Surgery
- Follow visits for how long?
- Beat of luck and prayers to Pam and Keeson!
- well...we're off to Dallas. Wish me luck...NO MORE SURGERY!
- Change in eyes after surgery
- Well I spoke to the craniofacial nurse about Laura's brow pinching
- Speaking of soft spots.....
- Encephalohematoma
- Immediate prayer needed
- fertility
- CT scan update.
- Blisters on head...over 3 weeks, help!
- When will I get CT results?
- Our trip to Dallas (pics with Pam, Jen, Kerre and I and the babes!)
- Update on Quintin after seeing Dr. Fearon (and a lesson for us who are obsessed!)
- was your cranio baby breech or stuck in utero???
- Ultrasounds
- Message from André
- questions
- It's here it's here
- Looking for Vanderbilt Patients
- Advice on ICP
- TM- Ethan's Mommy....
- Good Luck with your follow up Lilah
- Ehlers Danlos???
- is this normal??
- Can someone please explain?
- Jeremys scar
- Looking for people in NY
- Where to donate for cranio research and awareness etc.
- Frustrated with other kids making fun of my daughter
- Happy New Head Day!
- How Many Moms Decided To Stay Home
- Logan's NS Follow-up
- Rohan's eye appointment
- heterochromia's in the house??
- Concerns about hitting soft spots
- More questions from me...
- Anyone know when the Coronal Suture is supposed to fuse??
- Hey Lisa......
- Photos of Bryan in his deced out helmet
- Nikki's 1st follow up
- Should I be concerned?
- How long did it take for sagittals to fill in?
- Nikki's 1st follow up update
- Considering Springs for Saggital, can you comment
- Julian's got his helmet
- Our appointment
- Appointment Updates
- McKenna's head
- can anyone advise on serious plagio?
- post op ear problems?
- I am so proud! My little Laura is babbling!!!!
- Hayden's Check-Up...Need Opinions, please
- maybe i'm just paranoid...
- Still don't know where we stand
- Not completely satisfied!
- torticollis
- Bryan ill
- Reflections of One-Year Post-Op
- Isaac's neurology appointment update w/pics...
- Checking out child #2, cranio siblings?
- Saw a Metopic Cranio kid today...
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