View Full Version : Craniosynostosis Chat
- Why do I keep worrying?
- want opinions one my pic
- New photos of Sofia: Do you notice a difference?!
- Some advice
- Ear Asymmetry
- Chloe has Muenke
- so over it all!
- Now I'm freaking out
- This time last week my little man was back safely
- Pics advice
- The day has come...Sports!
- Surgery Week and a Tropical Storm
- keeping baby safe after surgery
- One Year
- CranioMamas: Reece's Rainbow Advocates needed!
- OMG It's Gabe's First Cranioversary!!!
- Bi-Coronal Surgery--August 1st
- HELP - Mild metopic surgery scheduled - having second thoughts
- Appearance matters more than function?!?!?
- Well it's been a year and still no diagnosis...
- hi everyone
- hi everyone
- Lamboid moms, please look at this noggin
- Cranio Awareness Video
- finally have a new op date for will
- 2nd surgery stories...please share
- Having a tough time
- Okay to fly?
- Long Overdue update on ChloeBear
- Eye problems 4weeks post-op???
- Apert Syndrome
- Cranioversary?
- New here - possible Metopic Cranio?
- Camdyn Graduated!
- Happy Cranioversary, Tadpole!
- Update from 2nd opinion
- YAY...it's over!!
- 2 years Cranioversery
- Melbourne Meet and Greet
- Article on our son's spring surgery for sagittal at GOSH in New Scientist journal
- chance of next pregnancy
- Butterfly Representing Cranio
- 1st Cranioversary....and Helmet-free!!
- Almost 8 months post op and 18 months old!
- Melbourne Meet and Greet/Catchup
- Please help a mom who is afraid her child might have coronal cranio--input needed
- soft spots seem bigger.
- Need Stories and Photos
- eye folds
- It's August Already
- No head growth
- 2 Year Post Op Checkup
- Cranio and Schizophrenia Link?
- Encouragement for Metopic Parents
- Really glad this will be fixed
- Possible Bicoronal (After CVR for Sagittal)
- Follow up Question
- Newly diagnosed - saggital suture
- Post-op bulge after extended strip (ear to ear) for sagittal
- Traveling with a Toddler
- My new obsession
- Head Pickers Please Help
- Childrens Hospital contest
- The day is coming!
- 9mo daughter fontanel closed/my first had metopic- Advice needed pls read!
- Developmental delay
- Pre-surgery sleeping concern (sagittal)
- New here
- Jesse's Cranioversary
- My dd had metopic corrected 12/11 Eye Doc said she has a sixth nerve issue
- Second guessing myself
- Are pulsating soft spots normal
- Positional plagiocephaly? Head pickers please!
- New helmet questions
- Help with Seperation Anxiety
- Helmet and the car seat
- Article on the internet
- Maybe I am just paranoid.....
- Head pickers can you please help
- This pic makes me sad ...
- We're back...but this time not for Cranio...
- Monkey at 18 months post-op (corrected mild metopic)
- worried about CT
- Alder Hey & residual soft spot repair
- Genetic Testing and Insurance appeal?
- I Love Jesse's new head
- CT and Update
- Second surgery to correct skull shape (lambdoid synostosis)
- Second Operation?
- 6 months post op and new sutures fused
- Tight helmet
- Slow head growth after surgery?
- Headpickers - Please tell me I'm nuts
- Three Years!
- The helmet *sigh*
- coronal bumps
- High dose folic acid and cranio
- Met with the geneticist... Saerthe-Chotzen?
- 3-Month Post-Op
- Sofia 8 year old profile pics
- Simon's CVR post op update (lambdoid synostosis)
- Brain growth
- Kids with Crouzon syndrome
- 8 months post op for metopic help!
- David's Metopic: 5 Years Post Op
- Impact of Surgery for Mild Metopic Synostosis on Developmental Delays
- Sagittal synostosis guidance second time???
- Another child born with Sagittal!! Long wait for initial appointment Dr Fearon
- Endoscopic vs. Open??? Experience with Dr. Igbase or Dr. Fearon???
- cranio or microcephaly?
- Bicoronal procedure
- Geneticist
- Headpickers please, for my niece
- 3 months post op
- Looking at your child in the mirror (the mirror effect)
- 1 year post op Sagital and now has 18mth old check up.
- Surgery in 2 Days
- Aetna Health Insurance for Indiv. Aexcel network Dr Fearon
- Second Opinion abroad?
- Worried Sick Mom
- In Dallas!
- Insurance Help Please!
- Freaking Out
- On the other side ... AGAIN!
- Worried Momma- Sagittal
- Back on the Cranio Rollercoaster :(
- Metopic Ridge- Wait and See Category: Opinions Please Headpickers!
- Coronal Cranio and Strbysmus
- Surgery scheduled for Nov 12th.
- Experience with Procrit anyone?
- starting playgroup and terrified to leave him.
- Headaches with post surgery
- So torn
- Cranio Butterflies has Launched!
- question reguarding my daughter
- yet another question
- Top Craniofacial surgeons in the US???
- Second coronal cranio surgery in December- 5 years old
- Fall Newsletter from Child&Infant Learning Project
- soft spot question
- bicoronal at age 3 ???
- is it possible???
- when did you notice??
- what questions to ask the neurosurgeon
- a little advice needed,possible cranio in new baby.
- Swelling
- doubt about cranio, anyone knows?
- Spring surgery with helmet?
- confused!!!!
- Starting to get Anxious
- Update to our appointment with the specialist
- 4 week old, extreme ridging... possible lambdoid?
- Catscan??????
- advice please
- Confused!! Cranio or no Cranio??
- New lambdoid mom; need guidance
- Sinking Suture?
- Ryan 4+ months post op - Metopic- Question
- Pappiledema
- Can I just say....
- Boone's Bump
- Did you shave the full head?
- Thank you
- suture ?
- Speech delay???
- Son got x-ray today-have questions
- More than one child with cranio
- Post surgery question
- 1 Year post op, bump on scar.
- Endoscopic for Lambdoid
- Opinions please. Can you see the wonkiness?
- Ridging at 5 Months Post-Op
- 2nd cranioversary!!
- Appointment today at U of M
- Surgery Tomorrow!
- Craniosynostosis & Deformational????
- Neurosurgeon vs. Plastic Surgeon
- Does it ever end?
- On the other side!
- How long does it take to settle down
- My son fell on his head 2.5 months post op
- Surgery at 16 months??
- Do I have craniosynostosis???
- We are on the other side!!
- Compiling New List of Precedent
- Trig question...
- If famous musicians had untreated cranio?
- Overlapping plates vs. suture closing question (with pics)
- NS appointment this thursday! So scared!
- Post surgery Problems?
- Is it possible...
- Sagittal Synotosis Secondary to Hydrocephalus
- Endoscopic Spring Surgery
- What do you think? (pics)
- Sagittal - 3 years post op
- Headaches in post-op kids
- Overlapping Sutures and Closed soft spot- Need Advice
- Options for metopic in Ontario
- Question about saggital cranio...
- Roman's 2 year "cranioversary"
- Physical Activites
- Thought I'd pop in to say "hi"
- Thoughts from head pickers please!
- Coronal moms a question
- Anybody use Dr Murthy and Dr Chen in Ohio?
- Three sutures closed @ 15 months
- The Struggle is Part of the Story
- Chiari & Mercedes Benz pattern (lambdoid)
- First apt with DR. Wehby what to expect??
- Worried. Nnew to crani
- Chloe Update! Coronal
- Sagittal questions
- Bone paste surgery: how long?
- Sagital only near the back? New & confused...
- 2nd baby with cranio?
- 1 year cranioversary!
- Cranio and Astigmatism
- Sagittal query - new to site
- Will my son look different? has severe trigonocephaly
- our son's left lambdoid suture is fused
- Severe sagittal cranio - questions
- Blood transfusion
- New mon on forum with coronal craniokid
- Cranio Symbol?
- endoscopic doc in Chicago?
- Second Opinion Complete
- Surgery Monday and Acid Reflux?
- Sagittal and both lambdoid sutures fused (Mercedez benz synostosis?)
- Surgery Scheduled
- Metopic surgery...how long out of daycare?
- Metopic ridge causes Trigonocephaly? MRI or CT? We're worrying so much.
- 2 weeks post op, fever?
- Does any one know Dr symth and Dr woo from St Louis?
- Pinpoint fontanel / closed fontanel
- Scarlett's 1st Cranioversary
- So confused! Wish things were different...
- Surgery Scheduled
- CT scan dangers?
- Concerns after Endo Surgery
- Mild or Moderate Metopic? Headpickers please....
- Huge hematoma over 1 year after Metopic CVR?!?!
- Now we wait......
- been away for a while, but want to know.....
- First NS appointment over and now I'm totally confused!!
- hi all
- Torticollis Treatment
- Ever deepening temples + dent on backside linked to metopic ridge?
- Head pickers please look.
- Headpickers, is this cranio?
- I like how she looks now
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