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View Full Version : Craniosynostosis Chat


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  1. Have any of your cranio infants obtained an unexplainable bone fracture???
  2. question about sleep and goose egg four months post op
  3. Surgery scheduled and other findings
  4. sattigal cranystois surgery
  5. Head tilt while running
  6. I'm losing it
  7. Aussie Cranio Parents
  8. Oh my
  9. Conversations About Cranio
  10. Welcome to Holland
  11. What do you think?
  12. Phrenology?!!!
  13. I literally feel sick...
  14. Update!
  15. Metopic Cousins
  16. underbite
  17. Shocked, scared...hating cranio!
  18. NEW And Worried!! Head pickers please!!
  19. Fat cell injections for post helmet therapy/post op metopics
  20. This is it x
  21. Freaking out!!!
  22. question - four years post-surgery
  23. length of pregnancy - curious as to how long cranio moms went for
  24. Delivery options with cranio
  25. Just curious..... How much did your cranio surgery $$$$$$?
  26. done with surgery-but pupils dilated
  27. Question about eye turning in
  28. Your head picking skills, please....
  29. Unexpected outcome at CT scan
  30. What do you think of Zane's head?
  31. Head tilt question
  32. Big Bump on the Head?!
  33. does she have coronal cranio?
  34. NS appt tomorrow...can't sleep
  35. Headpickers, Help Please!!
  36. Need some support!
  37. we are on the other side x
  38. Twins Diagnosed
  39. Preparing a 2.5 year old for surgery. Not cranio surgery but surgery none the less
  40. Metopics and behaviour concerns or is this normal?
  41. I Love My Cranio Family
  42. Xander's third cranioversary today
  43. Info on the 2012 CCA family retreat
  44. Hats, head bands etc
  45. Probably a silly concern....
  46. Hospital gown pitfalls and strengths
  47. Torticollis?
  48. Cranio Families Melbouren Meet and Greet
  49. 3 month post op - soft spot
  50. It's coming round quickly
  51. 1 year post op head changes
  52. Appt w/Dr. Staffenberg tomorrow. Questions...
  53. Question for Metopic Mom's who chose endoscopic
  54. Good News..sorta
  55. bicoronal moms....
  56. Corrective Surgery for a Left Unicoronal Synostosis
  57. Monkey's one year post-op checkup!
  58. 3.5 years post Metopic cranio surgery & 2.5 years post Chiari 1 decompression
  59. What a difference a year makes...
  60. Back to Sick Kids in early March.
  61. Molding your newborns head
  62. Narrowing and pinching of the forehead
  63. Trigonocephaly? Pictures of my 20 month old. Head Pickers please!!
  64. Dissolvable stitches post op?!?!
  65. Question re: flatness of head
  66. 1 Year Cranioversary!!
  67. What do you think of these pictures? Metopic synostosis?
  68. My daughter is waiting to see a surgeon. I am worried sick. Advice please!
  69. Blog finally finished...
  70. neosporin and getting it out of the hair
  71. Bad News, second surgery
  72. Tomorrow is nearly here...
  73. 8 months post-surgery sleeping a lot
  74. More severe than initially thought? Opinions?
  75. Holding Head?
  76. Worried about metopic ridge, not sure about cranio. Pictures.
  77. question about stitches?
  78. Flat on back, Metopic Ridge, Slight Trig? Should I be concerned?
  79. Large Fluid Bump on top of head, 7 months post op
  80. DS has metopic ridge. I have questions!
  81. When does "within the range of normal" become acceptable.
  82. Surgery scheduled
  83. Starting to get paranoid about illness before surgery!
  84. 16 year old with recently diagnosed craniosynostosis - please help!
  85. Adam's Three Year Cranioversary
  86. Conflicting (and highly divergent) Diagnoses...who to believe?
  87. head shape is reverting back
  88. Can raised pressure be un-diagnosed?
  89. Is it important to see a neurologist/neurosurgeon?
  90. Max still has his soft spot, should I be concerned?
  91. Developmental delay
  92. Bumps post surgery
  93. indentation on posterior fontanel?
  94. What would you do?? Re: Second Surgery
  95. Ridge is back already?!!!
  96. A cold bug has hit our house..
  97. How long from hospital assessment to operation?
  98. Frontal bossing post sagittal surgery - advice please.
  99. Ideas on what we need at the hospital....
  100. Help
  101. Going to Dr. Fearon- Out of Network
  102. Appointment Friday
  103. 3 months post op!
  104. Problems with Sleep
  105. Tubes
  106. Migraines and medication during pregnancy
  107. New Helmet Tomorrow
  108. Advice please! Newly diagnosed...(kinda long)
  109. Three fused plates... :(
  110. Post Coronal CVR and helmet therapy
  111. Question for lambdoid moms
  112. When to get concerned
  113. Looking for a craniofacial surgeon in Maine
  114. Timing of surgery for craniosynostosis
  115. Alabama mommies please! Birmingham Children's Hospital
  116. is there a cut off time where surgery is no longer an option?
  117. How long will it be before we can put shirts over Micah's head?
  118. scan to see if baby has cranio.
  119. I Missed Jack's Eyes
  120. Back of head ripple w/ helmet therapy
  121. Get a new pediatrician?
  122. Felt like I got punched in the gut today...
  123. How often are xrays wrong?
  124. We have a date for her second CVR/FOA
  125. Since I've had a baby with Cranio will I need a new obgyn?
  126. No date for surgery
  127. Can you head pick? Bicoronal?
  128. Cranio recovery
  129. Helmet after surgery?
  130. How long was your child's CVR surgery?
  131. Baby #5 am I being Paranoid? Head pickers please
  132. Is a plastic surgeon ok?
  133. Paranoid over baby #2's head shape
  134. Today's the day
  135. Craniosynostosis diagnosed at 19.
  136. Help! Constant Congestion
  137. Surgery is tomorrow. Question about feedings.
  138. Looking for advice
  139. "cosmetic"
  140. Crazy thing yesterday
  141. Pray for Jonah, surgery 3/28
  142. Please look at Sofia's temples
  143. Metopic with migraines, but not ICP
  144. Eye problems?
  145. Left Coronal 7 weeks post-op...forehead bulging on affected side
  146. MRI + Chiari? + Surgery Date
  147. Addisyn
  148. Jeremiah's 1st cranioversary!
  149. Trip to ER with Jesse - All OK
  150. Post-op behavioral changes (sleep patterns)
  151. Forehead dents 1 1/2 yr post op
  152. Ideas on Iron????
  153. CT Scan
  154. New here and Possible Saggital. Pics included
  155. Surgery is tomorrow, please pray for us
  156. Postponed Surgery
  157. Max- Two years post op from CVR #2
  158. I am actually getting somewhere! I have a date for Will!
  159. "dent" on forehead 1 year after surgery
  160. Helmet Tips?
  161. Seizures and sleep walking post op
  162. question about Swollen lymph nodes 4 months after surgery
  163. Advice Welcome- Marriage & Cranio
  164. Surgery date set for 17th July
  165. Postponed Surgery Again!
  166. Possible earlier date for surgery
  167. Metopic Cranio fixed with Endo (pics)
  168. Question??? HELP!!
  169. Cranio and Ear Infections
  170. Advice for sagittal mum in England please
  171. Head pickers please!
  172. Protective head gear after surgery?
  173. Head Pickers...take your pick! :)
  174. 10mo. old w/Metopic Ridge....headpickers please help. TY
  175. Happy 3 year Cranioversary Sophie!
  176. 3 month post op on the 24th april..look how well he is doing x
  177. Curious what you all think!
  178. update Bicoronal shakira
  179. CT Scan or not?
  180. More testing needed- really bummed out.
  181. Cranio and scoliosis link?
  182. CSF leak :(
  183. Coronal Smiles?
  184. Done helmet therapy - poor results (saggital)
  185. Help, Please Read
  186. Right uni Coronal Synostosis
  187. Upcomming appt. with the Neurosurgeon
  188. I am so ...... I have no words for the emotions i am feeling right now
  189. 3 month post op check up.
  190. Just a vent...
  191. Three year anniversary
  192. Happy 3rd Cranioversary
  193. Long time no see .... and a concern
  194. Tugging at ears and touching back of head...why?
  195. CT Scans Post-Surgery...how many?
  196. A concern of Mine-Head pickers please
  197. in DC now sent for ct scan
  198. Unicoronal surgery set for May 31t
  199. Older children diagnosed
  200. Xray report - sagittal sinus?
  201. Health Insurance Out of Network
  202. Metopic Pre-op Head Growth, measuring technique
  203. Metopic Synostosis - Jett Updated
  204. pseudo-strabismus vs strabismus
  205. Jonah Update: All Sutures Fused (Panosynostosis), No Syndrome
  206. Chloe's hospital gown
  207. Head Banging
  208. De-Lurking and looking for some opinions
  209. Please look at photos and see what you think
  210. We have an appointment with sick kids!
  211. We are on the other side!! But I have a question...
  212. Photos of Sofia's head...opinions again please
  213. Happy Mother's Day
  214. Multiple Cranio Kids- No Syndrome or Genetic Abnormality
  215. PLEASE help Cranio Care Bears win a $10,000 grant!!
  216. A little frustrated
  217. Would really appreciate your opinions
  218. Ireland mums how long did you wait
  219. Henry's First Cranioversary!
  220. Neuro-ophthalmologist Appointment
  221. Please look at new baby's head!
  222. Update
  223. Lily on Modern Family!!!!
  224. New- Would like some Head Pickers to look at ridge
  225. Anyone had Cranio surgery revision done at Johns Hopkins?
  226. On the other side!
  227. All done!!
  228. Neighbor 4mo Metopic Ridge, what to do . . .
  229. What are the causes for a second surgery?
  230. Partial fusion - ignore xray
  231. Eyes crossed after surgery?
  232. Trying to organise your other kids
  233. Second baby might have craniosynistosis also
  234. Hello! ::waving:: (head pickers welcome)
  235. Should I be worried? Because I am!
  236. Is Post Surgery Fussiness Normal
  237. Michigan parents!
  238. Orphan girls with Apert Syndrome!
  239. got date am away on vacation worried
  240. 2 1/2 years post-op and now possible thinning of skull
  241. springs surgery and I have questions/concerns
  242. PS Follow up / Frontal Bossing
  243. Bi-coronal and scared to death!
  244. Head pickers please!!
  245. Back from NS appt with Dr. Ahn
  246. eczema disappeared after surgery
  247. What's Normal?
  248. Update on Bryce
  249. Is surgery always necessary?
  250. Post cranio springs surgery for sagittal, now coronal????