View Full Version : Craniosynostosis Chat
- 2 years ago today!!!!
- Push for referral?
- No more helmet at school
- Bruise on head that won't go away
- Frustrated!!please help!
- Time off work for Surgery
- Forid changing?????
- Joey's 1st Cranio-versary!
- Question About Diagnosis...
- Ten Days Left
- Im new, mommas please help!
- Procrit??!??
- Eye direction?
- We are officially joining CK!
- Surgery Fast Approaching....
- Tell me everything is going to be OK.
- Disappointed!!!!
- Thoughts?
- Progress Pics from Endoscopic Procedure for Metopic
- We are having surgery with Dr. Fearon
- Eye issues after surgery?
- Calling all Aussie mums!
- Is Amoxicillin safe before surgery?
- We made it to the other side!
- Seven Days Post-Op Ridge
- 2 years post-op
- "Did you drop him on his head?" asked another mom
- Angel's New Bumps?
- New and son has multiple sutures closed
- Eyes partially open while sleeping, 4 days post opp
- more health insurance questions
- Three weeks until surgery, worried mom ramblings...
- Birthday Party 11 days Postop?
- Evan will be going back for his second CVR
- One week Post op
- Surgery on Wednesday
- Malpractice???
- Southern California specialist recommendations?
- Surgery Day
- Just wanted to post a update!
- Surgery over :)
- concerns about ICP
- So confused?
- HELP! 5yr old chiari & growth hormone deficient
- what to expect from the optimologist? and got a little more clarity fron the doctor
- Parker's recovery!
- Were Home
- We are on the other side!
- mild sagital? need advice
- FINALLY home!!
- Insurance question- Dr. Fearon
- Dr in my area?
- How much does "liking" your surgeon matter?
- Seeking Advice on Recovery
- We just got home from hospital! Had some questions ?
- Calling all headpickers!!
- My son is 4.5 years old
- Cranio/Hypodontia connected?
- Throbbing pulse on top centre of our daughters head
- Future of cranio surgery?
- 1 week post op
- Wish us luck!!!
- Preparing for upcoming appointment. Advice needed.
- Help and Advice Please ...............
- help please!!
- Special Time with older Siblings
- Aussie Mums
- Met the surgeons once
- Surgeon Recommendation in Either St. Louis or Indianapolis
- Has anyone's pediatrician disagreed with surgery???
- Eyes re-swelling??
- 2 weeks til surgery and im freaking out a little....
- Max and Mateo's 6 mo craniofacial appt. . .I'm worried!
- update on adrian long sorry:/
- Coughing and headaches
- Getting nervous, anxious, and everything that goes along with the surgery!
- Dr Fearon patients
- Attention: Headpickers, please take a look at these photos of kyronkizh's baby
- Happy 2 year cranioversary Maya!
- Eyes open while sleeping?
- Possible Metopic Synostosis - Please take a look and tell me what you think.........
- Breastfeeding after endo surgery?
- Fiona's follow up tomorrow
- The Sniffles
- not sure if i should have said anything... but
- Finally picked a Surgeon!
- Tongue Sucking?
- To many Questions I have
- Keeping a very close eye on her
- Pics of our Sagittal Baby Girl Timberleigh
- Doctor Recommendations in Denver area
- what to expect?
- no tear duct from cranio
- What are the chances....
- Next, tonsil op!
- News Article and video in my local paper about Cranio Care Bears & Craniosynostosis!
- Terrible 2s...
- Update on Zane (just had his follow-up with CFS)
- Don't forget!
- Can you see it?
- Has anyone had their child diagnosed with frontal lobe syndrome after surgery?
- undercorrected sagittal craniosynostosis
- Metopic ridge with trig?
- We just got 3 appointments scheduled!
- Ok, I know I am crazy but....
- cranio or not?
- Jacks surgery moved to today
- 10 years.
- Sleeping issues?
- really tiny soft spot and no cranio?
- Surgery Scheduled
- My son fell
- Bulging Soft Spot?
- Torticollis...outcomes and experiences
- indent 7 month post op
- Anyone?
- Jack is home!!! (pics included)
- head is elongating again...
- Help! Possible ICP
- Dr. Fearon emailed me back
- Blister on scar
- My story of guilt
- stitches popping too soon post surgery..please help
- When to tell your child?
- Update on Bella
- Any cranio kids who had their operation when they were over one year old?
- What do you call cranio?
- Pictures and opinions please :)
- Joe - Operation at Oxford JR (13th October 2011) - UK
- all confused :s
- Finally! I get to see a NS! Newer member
- One of Z's cardiologists had cranio
- what do you think?
- Concerns at appt today...anybody with same experience?
- Another update on Angel.
- Soft Spots still bulging
- So we got the CT scan results
- Acceptance... I just can't!
- 3 Months Post-Op - More or Less
- Fat grafting and split bone grafting
- 6 months post-op
- Q about metopic and eyes/eyebrows
- How do you not freak out...?
- surgery times in ireland
- Appointment with the CFS Today
- i have a question about ridges and soft spots after a crainial vault reconstruction
- Video On Craniosynostosis!!
- Screws
- Trip to Dallas is Booked
- New Baby Born Today...Pretty Sure She Has Cranio Like My First
- A long-overdue update on Monkey
- I have been going back and forth about wether or not to say anything but...
- Over calcifying and refusion after only 4 months post op..... VERY NERVOUS
- Seeking advice re: helmet
- Siblings
- Choosing a doctor
- Why I Love CranioKids
- Need some prayer for Fiona
- Does lines above the eyebrow mean trig?
- stuck......
- long over due update on Layne
- 15 month old just developed ridge
- 7 years on and developing a ridge
- What are the signs of inter cranial pressure
- a note to all and Cranio Care Bears
- NASHVILLE or BUST!!!!!!
- Home after surgery
- Advice needed... Big bumps...
- Serviced Apartment in Dallas, Texas
- Sleeping (or lack thereof) Concerns
- CT Results- what do you think?
- Helpful Information for Mild Metopic Cases....
- Success, failures, and a stubborn hubby
- How do you approach this one?
- I have a question..hope Im in the right spot.
- Sagittal Recurring?
- Feeling Nervous .... What to expect?
- Head Banging
- Attn: Fearon Patients! Need Precedent for Appeal Please!!
- Melbourne greet and meet!
- Single Case Agreement with Fearon/Sacco?? Need Precedent Please
- How did I not suspect this? ....and an update on Oliver
- PROCRIT??? I can't decide.....
- Feeling a ridge 5 month post op Lambdoid??????
- Genetic testing
- 15 month old metopic ridge/soft spot closure ct results??
- Any info on jr oxford.
- nervous about diagnosis
- concerns about metopic diagnosis and surgery decision
- genetics and chiari
- bumps on back of head
- New to the site and have concerns, possible metopic fusion?
- Obsession, Waiting & What If's
- Good news for Gwen!
- good news at app today!!
- Extended strip - How fast are the bones supposed to grow back ?
- Metopic 1 year post op
- A checklist to help the extended family: Every parent should pass it out :)
- Lump on head..
- Newly diagnosed multiple cranio in 14 year old
- Constant Reminders
- Follow Up Appointment
- He looked so diferent to all the others.
- i'm having a hard time :(
- Fetal alcohol syndrome
- We are amazed!!!
- Am I crazy?
- Vision and arms - is this related?
- We have a date...
- The WAITING... the What If's ... the Why's... Got a bad case of WW111
- New with questions regarding Trigonocephaly
- One of Hannah's favorite pics. Look, no face.
- Have many questions, any opinions would be great!
- I need your help!
- 2 weeks from surgery
- So glad we had the surgery...
- HAPPY 1ST CRANIOVERSARY BRENTLEY!!!(Summer)
- getting worse?
- Metopic Ridge....need opinions.......
- Sagital synostosis surgery help me decide!
- cranio and breath holding attacks?
- We have a date
- Help & opinions appreciated please xx
- Headpickers needed!!
- 1 week to go adn INSURANCE HAS BEEN APPROVED!!!!
- Should I change pediatricians or is this the "norm." Any Phoenix Moms out there???
- Strabismus
- Scar is wide, question?
- Head pickers needed!
- LO's surgery is next Friday.
- Just ONE More Day at Home before we leave for Hannah's surgery.
- What are the busiest craniofacial hospitals on the east coast?
- 2nd CVR worries
- Please help.
- Prayers please!
- neurosurgeon visit tomorrow :(
- What do you think of CT Scan pictures!!!
- Federal BCBS PPO
- Post Endoscopic surgery recovery questions
- Roman's 1 year cranioversary!
- surgery brought forward...eeeekkkkkk.
- Does it get better???
- CT Scan Images
- Head pickers needed for metopic cranio! :)
- We are on the other side!!!
- With Strangers when do u go into the whole cranio explanation?
- Keep hearing the word CRANIOSYNOSTOSIS on TV for drug use law suits
- Feeling Overwhelmed
- Surgery Next Week
- Eye Exam Follow Up
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