View Full Version : Craniosynostosis Chat
- New Orleans?
- NBC News Story on Cranio in San Diego
- Finally got an appointment with the neurosurgeon!
- Cranio now Plagio?
- We are on the other side!!!!
- Confused....mum of baby Roan
- Mateo has a hard bump on his head, I'm worried!
- Happy cranioversary Mikayla!! (Jenny's DD)
- Coronal, lambdoid, what is it? Help me speculate?
- 4 month old pos Cranio, now doesn't sleep much...
- Getting stressed out!
- Harper is in surgery
- Cranio Anniversary
- Appointment with NS - Dr. Igbase in KC
- We have a date... What to take?
- Has anyone had to have multiple head surgeries from Craniosynostosis?
- day care options
- Really Concerned About Temples
- last feed before surgery
- I am just amazed
- 2 month post-op check tomorrow morning
- Well you guys were right!
- Developement affected by surgery?
- Cranio awareness volunteer opportunity
- How to make up mind
- headshape change!
- I think I'm going a bit crazy and need your head picking skills!
- Bella is on her way home
- Ack!!
- Genetic testing (esp Michigan families)
- how early..?
- Glasses for 8 month old????
- Gwen's one year cranioversary!
- We are back more than a year later with another concern
- Got our appt tomorrow....not sure what to expect!
- Six year old's surgery went great!
- A huge thank you to all of you!
- Cranio Clinic Today
- CT Scan Results
- 6 mo post op CFS appt on Mon
- On the other side, but don't see any change
- Could Cranio Cause This?
- Help dd keeps pulling off dressing.
- Martial anxiety with surgery???
- Thyroid and Crano
- 4 month post-op check up tomorrow
- Epicanthal folds
- Help with rude comments
- 1st Cranioversary
- glasses for a helmet-wearing baby?
- Just need to know a little worried
- Calling all head pickers!! Is this normal?
- Questions about upcoming surgery -- San Diego, CA
- Very Rare bilateral isolated frontosphenoidal Craniosynostosis, need input
- Postop Tantrums?
- Cranio benefit? Ideas, suggestions?
- high-pitched cry related to cranio?
- Looks like she wore a headband too tightly.
- Gettin nervous now.
- Insurance questions HELP!
- Cranio Helmet Help
- MAIN things we want people to know about Cranio. & Awareness
- Frustrated!
- Shouldn't ped. nurses at least know what cranio is?
- Cranio and birth order?
- any cranio cases when head was too small?
- Importance of Taking Your Cranio Kid to the Eye Doctor
- 12month post op checkup
- Headpickers please take a look!
- 1 month old with possible sagittal cranio... in desperate need of advice
- Possible Torticollis...Advice?
- Just taken some recent pictures of Mr Joshua!!
- new here and so confused!
- What other doctors do an email consult?
- Houston, TX
- Finally have a surgery date....
- How common are developmental issues?
- Beautiful Tribute to Our Cranio Angels
- Post CVR eye issues?
- Asger five years old, will finally undergo surgery here in Denmark on September 8
- Cant sleep for worrying!!
- Surgery #2 at 3yo
- Getting stitches wet??
- Hello
- His forehead is so narrow!
- Doctors in Illinois (Peoria) and doctors in general
- How do you cope?
- New pictures, what do you think
- Sinus infections in Metopic cases
- Vommiting?
- Getting close to surgery date and scared!
- Help!! Delays, Immaturities, and Insecurities?!?!
- Bilateral Lambdoid/Chairi Surgery with Fearon and Sacco, Insurance ?s
- We had our NS appointment today!
- Frustrated! Referred to Ophthalmologist
- How fast can the frontal fontanel "close"?
- Did you like your surgeon?
- Starting Procrit shots next week for 6 weeks prior to surgery... Advice???
- woo hoo!
- 2nd surgery for sagittal in October, very anxious and starting to doubt things!!
- CT Scan Soon
- Metopic and apraxia?
- Puss Coming out of incision
- how to deal with the waiting
- Newly Diagnosed Sag Parents, Guidance Needed!
- bulging above ears?
- Questions re Chiari
- Questions re Chiari
- Happy 1st Cranioversary Mateo!!
- head size
- Scans went well.
- fluid between plates??
- Anyone dealt with Children's Mercy insurance (KS)?
- Metopic Cranio can someone tell me more
- Worried Mom
- Craniosynostosis & developmental delays (speech)
- Twisted Septum Due to Cranio
- Metopic Cranio and soft spot
- Headpickers let me know what you think
- CT questions
- CT Scan Tomorrow
- How long post-surgery can he go back to daycare?
- Developmental Delay definition?
- Texans: Dell Children's and Dr. Harshbarger
- Emily's Eyes
- Lazy eye
- New Mommy calling "Headpickers"
- Dr. Staffenberg email
- Blogging Cranio Moms
- Help - Possible Scaphocephaly in newborn who was c-section (pictures)
- Surgery Team
- How things have changed
- question
- Help with genetics
- One week until surgery
- 16 months post-op and...
- Diagnosed and Waiting on Surgery Date: Looking for Friends
- Did anyone see this newstory?
- Finally on the other side!
- Met the new surgeon today
- Second surgeries?
- new metopic mommy with a LOT of questions
- 2 days until surgery...
- Appointment is getting close...
- Hmmm.....
- Hi again - bit concerned
- sedation..can we both go in?
- First comment : (
- Iowa Advice?
- Surgery in 4 days...
- Our Non-Cranio Kiddos
- Eyes close together
- Vomiting 6 wk old
- FOA vs CVR??
- Scared to have more kids
- Atlanta
- Waiting for a consult : How long is too long?
- Please Help!
- Puffy eyes
- Havent heard back from Doctor yet for surgery date..
- Feeling down waiting for our appointment
- How to deal with an older child..
- Overwhelmed
- Could you donate?
- 13 months post op appointment with NS
- saw the ophthalmologist today...
- Heart shapped head...
- Need some advice!
- Coronal Brain growth before and after surgery
- Autoimmune disorder
- GP Complaint
- Is this normal after surgery... ?
- swelling medication
- surgeons in NC
- Lambnoid ridge???
- seizures?
- Brain MRI/MRA and spinal tap tomorrow
- 1st Cranioversary!
- what is this
- Neurosurgeon appointment today - Sagittal craniosynostosis
- NS follow ups
- Awareness Band/Bracelet
- Older kids and surgery (sleeping)
- 6 month post op apt today
- How Do You Break The News?
- Eyebrows
- CT with Sedation
- One Year Post-op :)
- Two years!
- Asger in Denmark is on the other side of his split skull surgery
- 3 day's post-op - an update for all
- NS Appointment Tomorrow
- Possible Surgery Date!!
- It Feels Like Forever
- Surgery #3: Next Summer
- Help!!! Insurance B.S. - help please?
- Go see an opthamologist.... a must
- cold/sore throat before surgery??
- Duanes Retraction Syndrome
- Four months post-op!
- Sara Grace Update!
- Post-op update!
- how do you keep your little one from hitting their head on stuff
- Helmets (Post-Op)
- Heading to Dallas for the 1st time!!
- Lucas CFS Appt!
- What is clinic?
- ugh... i need some advice/help
- Angel's Update
- How long untill we get our date?
- Craniosynostosis & VP shunted hydrocephalus
- We are on the other side-well almost!
- Anyone have experience with UCLA?
- This is it.
- "Mother-in-Law" wants to turn my daughter's surgery into a circus.
- Roisin's 1st Cranioversary
- By Car or by Plane?!?!
- Ughhhhhhhhhhhhhhh!
- Oct 18th
- Soft spot still pulses on my post-op metopic 3 yr old
- more questions about sleeping position after surgery - how to make the nest?
- I know no sleep post-op is normal but....
- I need headpickers
- Appointment today waste of time!
- Time is flying past...
- scaphocephaly no surgery questions
- Less then 3 weeks
- thought id post pics here too
- distractors
- Right Uni Coronal Synostosis Mum
- Late Diagnosis at age 5
- Uni Coronal Mums In Australia
- Did you take your baby/older child into the OR
- hi its been a while since i was here last, how is everyone????
- my cranio baby is 2 tomorrow!
- Bad experience with opthalmologist
- Need advice (school and colds)
- Requesting advise from Dr. Fearon's patients
- Cranio Benefit
- Do you tell people about it
- Appt @ sick kids today
- Ear placement and Metopic?????
- So its our appointment tomorrow...
- Should I be worried?
- surgery definitley january.
- Need advice re: sleeping after surgery
- We have a date!
- 2.5+ years since surgery! Before and after pics.
- Finlay 5 months post op
- Surgery Moved Up! YEAH AND AHHHHH
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