- Is it common??
- Test your craniosynostosis knowledge
- Surgery Scheduled
- CCA quarterly newsletter
- Good Luck tomorrow Fiona and Mommy!
- Just wanted to...
- so the journey begins
- 1 year post
- No Helmet
- Complications
- Eyes
- Appt finally...
- Pre Surgery Questions
- Physical Therapy and Neurology
- Too Much Time on My hands??
- Im getting scared
- Icp
- Charlie's appointment
- What to expect?
- Changes
- Back to work!
- Caty Sue
- Step out of the bubble
- I just found out....
- Nephew's head shape has us worried.
- Some advice please!
- From Amanda 0502
- Today is the appt.
- Sofia's Appointment Update
- Physical Therapy
- Here it comes
- telling siblings
- Anyone with a 2year old bfing co sleeper
- Remy and family
- Need some help!!
- Holly's follow-Up Appointment Tomorrow!
- Did you get a card in the mail?
- soft spot
- Remy Did Great
- Question about soft spot
- More surgery...
- ridge along top of skull
- Miriam's update.
- Bettys update
- Starting to get stressed
- need answers
- Finally Remy's Pics (Moved Post)
- Helmet Graduation!
- update:Caitlyn Sue
- Vax question
- Metopic ridge after saggital surgery
- Meet Tyler
- Swelling Question
- It's nearly time!
- Ethan Update
- Fusing Suture Timeline
- really struggling with the surgery decision...
- Swollen???
- So confused
- Update
- Miriam's MRI
- Got a phone call today
- Sleeping Problems after surgery
- Worst experience ever
- Lexi's ct scan
- Jon Jr. doing great 3 mo Post Op
- Advice on 2 year old
- surgery next week at chop (pa) ack!
- all day pre-admin testing..ugh
- slow freak out brewing for monday's surg...
- Neurosurgeon or Craniofacial
- Getting worried...
- 2-Year Anniversary
- Kendall's Long Noggin'
- surgery is OVER! whew....
- my list of what to bring to hosp...
- we are home! holy cannoli!
- Need help with possible diagnoses (pics included)
- Cranio=Difficult Delivery
- Respect
- Numbing Patches
- Got a phonecall........
- 11 days post of from surgery....(@ CHOP)
- Boston-type craniosynostosis?
- Fiona is a trooper!!!
- ? about forehead after CVR
- Another eye surgery
- New to this group
- Poem (get ready to cry)
- Cvr
- head bumps
- After the surgery
- Have a question....
- My son Timothy
- Sophie's surgery
- Going to the hospital tomorrow
- Update on Mild Metopic Case
- Lambdoid Synostosis
- Personality changes
- Multiple children with cranio problems HELP!!
- Zachary's post op anniversary
- Our baby is here!
- Does anyone have ...
- To all sept surgeries
- Deaglans Surgery!!
- Update on Isaac...
- Craniosynostosis & Dandy Walker Malformation
- One more appointment
- Moshe first, now Yosef
- Still here- Saggital Question
- Jacks update (not good news)
- New and desparately need Help
- two little worries
- Loma Linda??
- Prayers please and opinions needed
- On a brighter note!!
- I'm a little too calm
- After Surgery Questions....
- The Helmet...
- Found out a bit more!!
- Frankie update
- new post-surgery question
- Timothy's surgery
- Pictures of Timothy
- Shriners??
- Pre-surgery Appointment
- In the hospital/home
- Making the Decision
- How Do You Calm These Nerves?
- Keri and Janet
- Ugh!!!!!
- Speech delay's in Saggittal
- Plastic Surgery: Before & After
- Help!!!
- Update on friends little girl !!
- Need some guidance please
- It's been a while
- Spit-up vs Vomit
- Attention cranio moms!!!
- Amanda is Home Yipee
- Zachary is home, too! : )
- Update
- first appt.
- meds, prescriptions, etc
- Post Op Questions
- Jacks ICP monitering date has come through!!
- Surgery Date for Gavin - Oct 24
- CCA newsletter + 18th family retreat
- Insurance
- What to do with Older Siblings
- 3D CT- Why does it look like cheese?
- Surgery at CHAM
- Crying fits
- Please take a look
- Craniosynostosis and Autism
- Justin's Surgery Oct 22
- Anyone Ever Decoupage Their Helmet?
- Infection
- 2 months post op update
- Soft spot question
- Long road ahead...
- Cranio in an adult?
- Fiona's follow up
- Zachary's followups
- How about a chat room??
- Can I really do this?
- Metopic Surgery Questions
- Gavin's Surgery Might Be Cancelled
- Metopic baby Roll Call!!
- What type of cranio
- Good News/Bad news
- Bleeding stiches
- Emotions or lack of rather
- cranio research study
- Mommy breakdown! Surgery soon!
- Talk Me Through This
- More Questions
- I am back!!
- Surgery Tomorrow!!!!
- Growth is slowing...
- Cranio Message from Iraq
- 1 Month post op checkup
- How many people grow up undiagnosed???
- Back to the Dr.'s
- Feeling helpless
- 400 members!
- drs
- Sadies Appt.
- Nervous 6 Month CT
- Need Serious Help
- Went to see Gavin
- frontal bossing?
- Gavin is Home
- Pre-op today
- Justin is 1 week post-op!
- My Eye Appointment Today
- chiara malformation
- Hailey's CT Scan....
- Happy B-Day Pocket !
- Everything is good!!
- appointment
- Update?
- Help, we have holes
- Dancing on the ceiling - Austin's 2 year update
- Losing it...
- Another Decision
- Back to the hospital
- All set
- Horns?
- prominent forhead after surgery??
- Microcephaly or cranio?
- Anyone Else in Early Intervention Program?
- Prayers for Quentin, boy with LDS
- headaches?
- Head rubbing
- Just Diagnosed and have lots of questions!
- Update on Christina......
- my newborn has been diagnos with saggital cranio
- I'm scared!!!
- Benefit
- Her head is still "pointy"
- Post-Op Insecurities
- newly diagnosed
- Boys vs Girls?
- multiple suture cranio
- Justin's Post-op Appointment
- My Little Helmet Head
- Austin- 2 years?
- Multiple Sutures
- Finacial Support?
- Doctor vs Doctor
- Pedi visit
- Dry skin around the suture line
- 2 Months today
- Alexander going in tomorrow for CT scan
- Recovery
- Freaking Out
- Chiropractors can help?!!!
- Scar question
- Something else to worrry about
- UPDATE-- See post on insurance in bad day
- Sagittal head question!
- Lots of news
- Age at First Diagnosis, Age at Surgery
- Epilepsy and cranio
- Hey Jacqui.....
- Jacqui!
- Torticollis
- Grace's Dad
- Multiple Suture Cranio Babies