View Full Version : Craniosynostosis Chat
- Updating for Kelly-Coda's Momma
- Just got home (ct pics)
- Second Surgery?
- feeling meh!!!
- Procrastination wins hahaha
- 3 months wait for NS for nothing!!!
- Cranio and Dyspraxia (Developmental Coordination Disorder)
- Hi everyone...its been a long time!
- GOSH have received his referral!!!
- What age did your cranio baby walk?
- Yea, We are finally on the other side!!!
- Valcanoeing?
- Has anyone had benefit for their child?
- Still waiting... only about 6 more months to go!
- What to expect from neurology appointment
- surgery postponed!
- Getting back on the horse...
- Roisin is 2!!
- Recent picture of Roisin
- Children's craniofacial surgery on TV
- Anybody been to doernbecher/seen Dr. Kuang?
- chicks dig scars t-shirts
- Sleep Troubles
- Has anyone seen Dr. Wood at Gillette Childrens, MN
- Very Happy After Seattle Childrens Consult
- program on bbc2 about crano surgery in children
- 1 year check-up with Dr. Staffenberg
- Is it a weird hope?
- Tomorrow is the big day...
- 1 year ago
- Official diagnosis
- Still no answers
- 4 weeks post-op
- Dr. Wehby vs Seattle Childrens
- Lucas Ped Appt
- finally getting somewhere!
- HELP!!!! I want a referal to alder hey!!
- Hospital Today UK- Support Needed Please :(
- Encapsulated plate??
- Surgery 4 weeks today at Alder Hey
- Miss BC
- ??????
- Wait and See / Keep an eye on it
- Any thoughts
- We are over surgery
- A simple blood test
- craniosynostosis and Irish/English heritage link?
- Hi everyone, Violet update
- On the Other Side!
- Alyssa update- 11 weeks post op
- Possible decision......
- Did your Cranio Cutie have increased ICP?
- cam's surgery now behind us - yay!
- Surgery for Soft Spots?
- Changes after surgery?
- Milestones
- The PS wants to see AJ!
- should I be concerned?
- info
- We are finally going to Alder Hey!!!
- Financial help in the UK
- Going crazy!
- What age is cvr for sagittal done?
- Dr Fearon
- It has been a year
- Starting to doubt myself....
- Alder Hey - need some feedback
- good news!
- Surgery the 23rd
- Need some suggestions
- So we had an appointment at Wake Forest...
- Article about Craniosynostosis & Avery's Angel Network
- Woohoo!!
- Possible that it's not Cranio?
- Head not growing
- When it rains it pours...
- ALDER HEY mummies and daddys!!!
- Low muscle tone???
- Help: How much Did your CVR Cost?
- updates, speech, hearing etc
- Please don't change..
- How our 2nd opinion went
- Pics of Changes from Mar-May(without surgery or helmet.)
- Cranio Clinic Today
- Doernbecher Appt Next Week - ?'s
- Email Dr. Fearon?
- cranio check up today
- We've got a date!
- Narrow Temples
- Surgery in less than a week!!!!
- Denial Time Over
- 2nd round...
- Dr Singh or Dr Bristol
- Eye Pain
- Sagittal Synostosis in 2nd child??
- Chiari malformation and Dr. Sacco
- Helmet remarks????
- craniorachishisis
- Comments on the scar after surgery?
- Question about suture closure?
- Advice required
- Surgery postponed!!
- Partial fusion of sagittal suture & corrective surgery
- quick update on Roman
- Looking for details about recovery in older kids
- Shane is going back to the CFS for follow-up....
- Meet you on the other side!
- Ethiopian adoption with craniosynostosis
- Right Coronal lumps & bumps
- We Were in the "Forget Zone" Awhile
- Bring it on - new surgery date
- ICP getting worse?
- Question about sleeping situation/position after surgery
- Facial asymmetry after surgery
- Plagio vs Cranio
- Im worried. Advice needed !!!
- New Ridge
- Change of doctor
- Just saying hi
- problems crawling?
- Local news will be doing a story on Craniosynostosis!
- Good luck today Zoe (Zoe's Mummy)
- Anyone heard of papilledema?
- Post Op Checkup
- Logan & Monkey finally meet!
- Dr. Staffenberg
- Excessive Sweating??
- Concerned about learning disabilities
- Almost a year...
- Do you know why CK is here?
- he hit his head
- AJ's apt is on the 20th.
- Post surgery rejection issues
- Older Kid Question
- what type of cranio?
- Ugh, this waiting is driving me insane!
- sensitivity to light?
- Tips to keep 4-year old on her back following surgery
- Hey all...2 weeks til surgery
- update on my charlie, 1 1/2 years post op
- NS wants MRI and spinal tap
- Yeah!!
- Finally
- Pre-Op June 21st I am nerved out
- ear infections!!
- Appt. bumped
- Pierson's surgery date
- jacks head shape and a strange ridge...
- Tristan's surgery date
- Noah Update
- pre op germ concerns
- Update on Nicolas' 6/15/11 surgery
- New here and new to cranio
- More fussy than usual....
- New to CK and this site...
- Surgery next week
- Help please
- In pain?
- Problems at home?
- Please help!! Email address for Dr Fearon and others?
- Jack has a new appointment.. Need advice on it!
- Creating Surgeon Listings
- Am I really seeing this .... new pic posted
- Surgery tomorrow...
- Swimming After Surgery
- Just to say thank you!
- Update on AJ's appointment today`
- My baby has had he's op 1 month bak.
- New need help
- My cranio boy is 1 year post-op!
- X-ray results are back.
- Tomorrow this time...
- Questions on weight gain
- I've got craniosynostosis, does my baby? Photos..
- Pumping during surgery
- Ophthamology appointment tomorrow
- Vision question
- On the other side....
- causes of craniosynostosis
- Jacks appointment today
- post-op checks
- when you see something in a kid...
- Update on Jeremiah's appointment
- Lumps and Bumps Anybody?
- Helloooooo other side!!!!
- Hellloooo... new and terrified.
- Jessie has a surgery date!
- Asger 5 years old, has high intracranial pressure
- 38 hours until surgery and loosing it....
- Graves Disease and Cranio
- So Nervous.. New Here
- Hearing loss confirmed
- Metopic "pinching"
- yearly follow up scheduled with a possible 6th surgery
- I miss his old head
- Norville is in Surgery
- 14 hours until surgery
- Welcoming my self to the other side
- People touching her head
- Surgery date set
- A little comparison collage
- Simon's Cranioversary
- New to foruM (sagital craniosynostsis)
- Today Landon is ONE YEAR post op!
- soft spots
- Head growth question
- And the verdict is.....
- Stressed to the max!
- Harper's development is delayed
- 3 days post op and i kinda miss the old head
- Update... CT scan picture included
- The Other Side
- Quick Question about flying?
- We are on the other side
- Skylar(3) right-coronal update:)
- Who is going to the walk in SD??
- I'm back!!! with a few questions
- To complain or not to complain that is the question?
- Caylee Anthony
- Endoscopic or FOA
- Surgery date is set.
- Siblings?
- It has been confirmed
- Im exhausted with him!!
- Angels dr appointment
- Sagital Craniosynostisis
- still concerned with frontal bossing
- Surgery in two weeks for my 6 yr. old
- 3 months post-op, one eye swelling?
- New here, DD diagnosed with Coronal Cranio, questions....
- Cfps didn't show up!
- I am panicked
- Cards for cranio
- A child with possible cranio; Should I say something?
- Sight Loss after surgery?
- Hate waiting :( and Jacks just getting worse. :(
- NS Appt Tomorrow
- One year ago TODAY!!
- Incensitive Comments
- First appointment w/CFS & NS tomorrow
- Anyone have a snorter?
- So Tempting....
- NS recommends a second surgery
- Need Review of CFS Dr Jesse Taylor from CHOP
- Mateo's Follow up W/NS today!
- Surgery and long term prognosis
- Lucas unofficial diagnosis!
- NS & PS notes are in
- We're on the other side!!!
- U will not believe this!!
Powered by vBulletin® Version 4.1.4 Copyright © 2013 vBulletin Solutions, Inc. All rights reserved.