View Full Version : Craniosynostosis Chat
- Complications during/after Sagittal Craniosynostosis repair?
- Age at the time of sagittal craniosynostosis surgery
- Video clips from The Doctors TV show
- Anyone have a helmet?
- Surgery in KY?
- If treated, is a cranio diagnosis there for life?
- ugh!!
- Please pray
- Craniosynostosis and optic nerve swelling + sleep apnea
- Happy 2nd Cranioversary Xander!! (evergreenmom)
- Laurie Won Our Appeal!
- headpickers
- Good video about Apraxia of speech and plagio..
- Prozac-craniosynostosis link
- Did cranio change you as a parent?
- sagital question ICP and ears
- new pictures up for all you head pickers(mild metopic)
- Extra bone growth?? What is it??
- Jorge Posada on "The Doctors"
- Front to back incision - Sagittal cranio
- Worried about the future?
- Results are in
- a rant on incision!
- 4 doctors, 4 different opinions
- Sleep Training before surgery?
- 2nd opinion tomoro
- BIG soft and hard metopic ridge
- Happy Belated 1 year post op (2nd surgery)
- Lambdoid "before" picture
- Opinion on sons head (pics included)
- 18 months
- Does the Helmat really work??? Need Help
- wet head pics :)
- Cranio and speech delays
- Question
- Business/awareness cards for CK?
- Childrens Hospital ITV Friday
- Evan met with his surgeons!
- Rhys has had his springs removed
- who is more important??
- new small issue
- Worried my 15 mo old has Lamboid Craino
- indent in back of head?
- stuffy nose before surgery
- Almost 12 months on..
- Surgery is Done!!!!
- Please send good thoughts and prayers, again!
- Worried and unsure
- STREP!!! One week before Monkey's surgery!
- Worried, i'm not sure if this is cranio related!!
- could he have trigonocephaly?
- Head Shape Nearly 2 Years Post-Op...
- Zak is on the other side!!
- CHildrens Hospital
- Fearon & Staffenberg email?
- UPDATE: Layla
- a bit of advice please
- 4 month post op Appointment
- Help!
- Need help with questions before 3rd CVR
- Doc won't refer him
- confused about insurance
- I'm being a freaky headpicker
- ive just re-watched childrens hospital.....
- just read the stupidest article on Pub Med
- Question for endoscopic mommies
- Think were getting somewhere.....
- CT question
- Trying to Choose a Dr.
- another insurance question
- Evan's surgery is tomorrow 2/25
- Possible Second Surgery :(
- Max's 1st Cranioversary - Feb 26
- Wish me luck
- 7 Days Post Op
- not sure of all these feelings
- A little boost (I hope) for nervous parents:)
- Question for those diagnosed 2+ yrs
- Happy Cranioversary Max!! (Perla)
- I'm so much in doubt, please help me
- Questions about Insurance and Doctors
- RED procedure?
- Thank GOD for CK
- Orthomerica StARband Designs
- Sedated ct scan
- Helmet therapy and cephalic index
- Udate after Kenendy's appt!! Good News!!
- Possible crossed eye worse after surgery?
- the sedation debate
- Thanks!!!
- Happy Cranioversary Ben!!
- Has anyone ever seen THIS before ?!?
- Metopic Eye Cross L or R?
- headpickers
- Misdiagnosis
- Update on William; and Where in the World Have I Been?!?
- Short update and little video
- Headpickers, please...Monkey's cousin Chunky
- surgury and craino terms database or thread?
- Old timer...Worrying again about Teshura!!
- Happy Cranioversary Alessio!
- 2 year Cranioversary coming up
- Question for a friend
- Justin goes to new NS tomorrow!
- update and appointment with paed.
- Justin has chiari
- SSRI and Cranio
- Michigan Mom Saying Hello - Update after Neurosurgeon
- Long post: Developmental Delays, Advice and General Rant
- Anyone with there lil ones have itchy or scratching with there ears and rubbing eyes?
- so.... impatient aly strikes again!!
- First appointment at The John Radcliffe hospital oxford
- Miami Children's Hospital
- Eye concerns
- Developmental Delays and Right Coronal
- Surgens/hospitals that you would NOT recommend
- Probiotics before surgery?
- Probably a stupid question!
- Ped opthamologist?
- Got a date, finally!
- Puffy eyes?
- Feeding
- Springs coming out tomorrow!
- Our Facebook group
- We Have Craniosynostosis Awareness Ribbons!
- They have the OK for surgery and we have a DATE!
- Headaches 2 years post-op
- So we have date confirmation
- Having abot of a melt down! Any sag and alder hey mums help please. x
- Feet
- Questions from a newbie
- My ped is making me feel horrible....
- 5 days!
- Scarring question (pic included)
- CT scan - Sick???
- Symptoms on Cranial Pressure
- Ct scan Results R In
- Please Help..Possible Craniosynostosis..Pics Included
- 6 months post op today!!!
- Heart Defects associated with Cranio?
- To Bounce or Not to Bounce?
- 3 month post op check up appt.
- Just wanted to share helmet therapy photos-Metopic
- Oh no-metopic ridge and feelings of despair
- Would love to mentor someone, but how?!?
- Surgery is over!!
- Anyone have a tongue tie clipped in a toddler?
- Does my son have craniosynostosis?
- Happy Cranioversary Brendan!
- Woo Hoo..Great news
- Just wondering
- Questions to ask
- Camerons 1yr follow up appointment !!
- Hashimoto's Disease
- Conflicting Opinions
- Left Coronal and concerns about her eyes
- Surgery #2, 6 months post-op
- Colic?
- cranio caused the microcephaly, or vice versa?
- A Second Opinion
- ???
- UK parents- which hospitals and why??
- 4 cranio boys meet:)
- Mixed emotions right now
- Help! Is it coming back?
- Post Op CT Scan Pics
- Metopic ridge coming back 14 mo. after surgery?
- 9 mo post-op & having forhead concerns. Help! Pic attached.
- Royal Manchester Children's Hospital??
- Julianna's 2nd surgery
- Brandt with Dr. Mann (photos)
- Cranio Awareness Video
- How many of you have met fellow CK families??
- dent on rear side of my daughters head (sorry long)
- Bilateral Coronal Almost 1 Year Post Op #2
- Skull defects
- 4 month post-op checkup
- Bump on top/sides of head with metopic????
- help please
- feeling down
- surgery
- any others with metopic without trig?
- Question re: Eye Problems with Coronal Cranio
- Have your little one had this? Going back to surgeon tomorrow.
- Sooo Frustrated
- A few CT scan Pictures. Please look
- Ear piercings?
- Specialists in Louisiana??
- "special interest"
- Gone Crazy Head Picking...Now a lump on right side?
- Surgery!
- Happy 6 month cranioversary, Robby & Joey!
- Sagittal and now Bilateral Lamboid?
- Dr STaffenberg, Dr Weiner, NYU
- Insurance and scheduling appointments\Surgery
- Going private?
- Woop
- Oh Finally, Some Good News!
- Frustration & worries continue
- bone reabsorption
- Cranio Results and other symptoms Older Kids
- Head shaking???
- i have quite frankly had enough now!!!!
- Im introducing two Metopic mommas today!
- Lovely goose-egg forming...
- why?????
- Does it look worse 6 weeks later?pics included
- We're back...updates.
- Question about how ICP is detected
- 3 days until surgery, having doubts
- adult with arnold chiari malformation
- Graduated Helmet Therapy!!!
- Prayers for Michael!!
- New, not sure sure about info we've received
- suggestions for flooring
- She Fell!!
- Here we go!!
- Cranio and Spermicide Use: Related?
- Veins in the head
- head tilting??
- wait and see AGAIN!
- In need of some advice...
- Anyone with a tube fed baby over a year old?
- before and after pics (and wanting opinions, please)
- Bump on Top of head: Post Sagittal-Surgery
- Prayers Please. CT results tomorrow
- 7 days till NS Appt and will be glad when its over!!!
- Neuro appointment!
- Helmet Vent
- Please tell me this is normal?
- How do I find clothes to dress her in after surgery
- Surgery with cold symptoms??
- Ct Results-Cranio
- First Endo procedure in Calgary
- Metopic Without Surgery Question
- bump on top of 5 yr old head??
- Our first consult on Monday
- Not what we wanted....
- Rude Doctor!
- Update on Julianna
- Genetic's appt on Monday
- Lydia is helmet-free!!!
- Muliple sutures fused
- Poll: Positioning In Utero
- Another Poll: Birthing a Cranio Child
- Metopic and flat head at back???
- Any UK kids had surgery somewhere other than a SUPRA centre??
- Mail on Sunday Article
- surgery on Thursday :(
- Layne fell down the stairs
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