View Full Version : Craniosynostosis Chat
- Bumpy head? Doctor refusal?
- Yay
- 4 months post op
- Saggittal - possible second invasive surgery?
- Strange pea sized bumps???
- im curious
- Went to the CFS today...
- Can an ultrasound tell you if your baby has cranio before they are born???
- a little advice please
- Cranio?
- Second surgery?
- The Posada's book
- Three month's post-op! Posterior CVR for Sagittal
- Double hair whorls
- Question - post op behavior/changes?
- Metopic surgery questions....
- Squamosal Synostosis? And a couple other questions.
- Eye Doc today!
- Nys cmr....
- Some reassurance please
- ICP Test at Opthamologist
- Bone growth?
- Texas Dr's
- Nightline- craniosynostosis
- Went back to PEDI
- Endoscopic vs full surgery
- Surgery Date set!!!
- A question
- Dr Staffenberg link
- Op in 1 week 1 day and pregnant!
- Radiation exposure and cranio
- Able to get insurance down the road?
- Things moving quickly...hope thats a good thing, surgery scheduled for endo pos open
- JD hit his head
- Will he still be the same?
- Pre op Thursday & operation Monday -HELP!
- Update - Surgery scheduled for Thursday
- CT Scan possible metopic?
- Angelo's 1st post op follow up
- Mateo 1st Pre-Op Appt
- CT Scan results are in...
- chiari
- George's new Head!
- Partially Fused Suture?
- Please give your opinion on these pictures!
- Behavioral/Personality/Motor Skills Issues
- Update on Monkey's Second (Third?) Opinion
- A couple questions...
- CT Scan Tomorrow
- I emailed Dr Fearon
- Q i need to know!!!!
- Opinions and support to join in please.
- Wanted to share
- The Beauty of Love
- Dr. Jimenez and Craniosynostosis research
- New to craniokids-surgery 9/21
- Kelsey
- Got surgery date yesterday - now Im in bits
- Surgery Tuesday :(
- Ok ladies take a look
- Can anyone give Dr Staffenberg's email?
- Give it 6 months!
- Emotional Already
- Anyone with these problems!
- Check this out World Crainofacial Foundation
- What could this be?
- Why are we doing this?
- How did you choose your hospital for the surgery?
- Just hours away now..thank you all
- poll ?
- 2 month post op with Dr Goodrich
- Mateo Post-Op Appt w/ Dr Shafron
- Nick's First Cranioversary!
- Joey's surgery tomorrow
- CT Results and NS appt
- Well baby visit Head on the chart
- CT scan tomorrow...
- Bulging is getting worse...
- 3 Months POST OP
- New to the board.. with a question...
- bump on top
- Keegan's 4 month post op appointments
- Noise coming from the top of her head
- has anyone heard from jacky ( hardtimes)?
- did anyone keep sterilising bottles after 1 yr to help stop infections pre op?
- Afraid of your child hitting a soft spot?
- Tell me what you think?
- 6 months post op with concerns.
- 2nd appt with ns
- Update on Ella
- stares in public...
- New spot on my daughters head
- We are home!!
- Nick's One Year Report
- update
- Helmet Question
- new to boards - 2 mo. post op and worrying again!!
- Back to the O.R. for Sophie
- Appointment rescheduled for next month
- Post Op appt.
- The speech evaluation results
- Question regarding the metopic suture closing?
- first cuddle after surgery
- Op scheduled for January
- spring surgery
- Sign of ICP or seizures?
- Dark circles below eyes after metopic surgery
- Headed back again...
- Will a saggy head ever 'round out'?
- Post-op eye pain?
- Trying not to jump to conclusions...
- 6 months post op... time does fly
- Feedback please
- a wee thought regarding after surgery
- How much do these surgeries actually cost?
- bleeding from incision site
- Some new headpicking, please?
- Metopic eyes
- why is he hitting his head?
- Follow up w/ Dr. David Genecov!
- Thinking of Jessica and Lilly today..
- Cradle cap after surgery
- New, looking for help and answers! ( Friends as well )
- Yet another question???
- I feel like a bad mother. I hate the idea of the helmet.
- Surgery is done!
- back in cranio watch
- It hit me hard today
- One month after surgery
- where and how to start?
- Can I get some opinions please?
- cranio and bifiduvula?
- Now i am just scared and crying...
- CFS emailed me back....
- Home from Seattle Children's appts
- Surgery Scheduled!!
- waiting for THAT dreaded letter now.
- Maybe I'm just paranoid but need your advice, opinions
- Update on my Jimmy Jammer
- Bryson's surgery is almost here...
- CFS is sending us to a neurosurgeon...
- pictures are up
- 1 year ago today!!!!
- Lisa and Liam!
- I love my GP
- Standing in crib, falling in crib: How do I protect her post-op head?
- Soft Spot - Saggital CVR
- we have an op date... and im terrified :(
- No surgery needed!
- Developmental delays?
- Anyone used Dr. Genecov?
- travel delay, helmet, surgery choice mix of ?'s!
- Officially hate hat shopping!
- Cranio and soft spots?
- Getting worried need advice thank you
- AJ's 1 year post-op appointment tomorrow!!
- Surgery is next week! Laurie took our case!
- Surgery Successful!!!
- Laura's 2.5 year post-op check-up is tomorrow
- Who was the member???
- Helmet rash??
- Dr. Staffenburg's email
- does any one know of any 'celebrities ' that have had/got cranio?
- Update on William
- 5 weeks is too long
- Post-op questions
- Can my next baby have cranio?
- Kyra's 1 year cranioversary!
- Monday
- Another update on William
- Update on Addison
- What are the signs
- My concern was renewed when chiari was discovered
- I was so mad yesterday!
- Insurance doesn't cover helmet.
- Thank you LAURIE TODD - WE WON!!!!!!!!
- So fed up, date changed
- CSEA 5K Jorge Posada Foundation for Craniosynostosis and CAPPS 10/31/2010
- Trying to chose pics for the neurosurgeon...
- She will need a helmet
- What to bring to the hospital?
- Vacant episodes, amI being neurotic???
- Avoiding this site
- questions???
- Doctor recommendation in NYC area
- Update: Matthew's head changes
- Cranio Question about seizures?
- IEP Week from hell Re: Hearing
- Eyes after surgery
- Just something else to worry about..LONG
- Hoping I am Over Reacting
- Thoughts and Prayers for Bryson...
- Marks CFS appointment
- Our follow up with Dr. David today.
- Eye turning in, metopic wait-and-see
- Does this look like a ridge?
- synostosis, seizures, & surgery!
- Bumps and Soft Spots
- Rhys is on
- Keegan 5 months post op picture
- any one with vertebrae info????
- Sagittal and spitting up? 1 year post op, 20 months old
- "Re-do" surgery
- endoscopic vs. CVR for metopic craniosynostosis
- Sagital in 2 year old (after coronal)
- Metopic mommas and others advice
- Have you dealt with this? What could it be?
- update on logan.
- I'm starting to freak out now.
- Pregnancy complications and c-section (sagittal baby) any link?
- I got my camera working, well kind of working...
- 3 weeks today
- question about softspot?
- Finally Met with the Neurosurgeon
- Off-set Ears on uni-coronal baby
- Pediatrician says this is a variation of normal
- Head growth...
- After thoughts- 7 weeks on
- speach delay and cranio?
- bi coronal
- Almost 6 months post op
- Maya's 1 yr cranioversary
- Another Eye doc follow up today!
- Travel
- soft spot vs no soft spot?
- Pinching is getting worse...
- did anyone here go to Cook Children's in Ft. Worth for treatment/surgery?
- better pictures, opinions please
- Broad forehead
- Article in Nov. 17th issue Woman's Day
- Strip crainiectomy
- Surgery Date is Set--November 11th!
- here we go again
- met the neurosurgeon yesterday
- New to all of this-So scared
- Free headbands for Cranio girls - My charity Avery's Angels
- He's going to need a shunt! Please reassure me.
- For those who went to DeVos
- Samantha's pictures and CT images - feedback welcome
- How do you get good head shots?
- A bit frustrated..ok majorly!!
- Good news for Logan!
- Developmental Delays & Cranio
- Great News!
- siblings. and emotions please i need advice
- Surgery Next Friday
- Questions
- I need help with my little guy.
- I have a few questions, if anyone has time
- Carter post op question
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