View Full Version : Craniosynostosis Chat
- ***it's been a year***
- Had our first specialist appointment today...
- Update for Gage
- had ANYONE heard of cranio before diagnosis?
- Tesh's bronchial scope went well
- Levothyroxin link?
- Nystagmus a sign of increased ICP?
- Adhesions or Endometriosis ??
- Coronal Ridging
- I am getting published in the local news paper!
- failure to descend
- chases story is online!
- Zack, 2 1/2 months post surgery
- Any Aussies on the forum?
- Nosebleeds...
- Zane's Surgery is Tomorrow
- Alternative signs of dehydration
- plates, screws, etc...
- insurance help
- problems sleeping due to craniosynostosis?
- question about symptoms
- developmental delays
- Metopic Cranio 7 months later post Op
- Going to be Guest Speaker for Cranio
- NEW MEMBER and VERY worried
- Need your expert advice Mums- am worried!
- Zane's blood issue
- cultures showed 2 infections
- what to ask NS
- We're in Dallas
- Zane is making big steps today!
- plastic surgon report not sure what to get from this
- Concerned
- Is my baby sleeping problems from cranio???
- When to follow up
- Anyone ever given a choice for surgery?
- omg
- 3 months post op
- CT scan pictures of mild metopic ?
- OP in 1 week, dysphagia improved:)
- Zane is HOME!!!
- Bump on incision line
- Video Slideshow of Cranio
- obsessing over cranio???
- Surgery on Tuesday- Any suggestions welcomed!!!!
- Here we go, "So it's just cosmetic?"
- Do parents have a choice for surgery??
- We are in Dallas
- Last minute hotel recommendation??
- Riding on Coronal AND Lambdoid?
- Anyone regret having the surgery?
- surgery 2.5 weeks ago, miss his old head...
- We are on the other side!!!
- One year anniversary
- When did your cranio kids start walking?
- 2 year post op follow up
- Wow,so many groups and organizations?????
- 2nd surgery
- Pulsating
- so *!*!*!* frustrated!!!
- Metopic then Saggital
- I met another cranio mom today!
- The meeting!!
- Any link to Breech babies with Cranio??
- Feedback needed!!
- Surgery in 8-16 weeks! Long post!
- Year and a half later
- Ashlyn is set for surgery
- Bump on back of head
- signs of intercranial pressure?
- looking better or worse?
- So frustrated ...ahhh!!
- Post-op headaches??
- Metopic? Your opinions please... photos inc.
- Trigonocephaly v's Autism
- Fetal ovarian cyst
- Know of any drs. in the carolinas experienced with metopic surgeries?
- What does a CVR consist of?
- Is it Genetic?
- We've made it to Dallas!
- Confused and worried still
- I was watching tv
- Question about head growth post-op
- More surgery or not?
- One-Year Cranioversary (Again)
- Kind of creepy question regarding the bone removal
- Has anyone else been prego, when the surgery date came????
- Adult with Chairi
- I need your opinion about Daria's forehead
- i got my story on the company website
- Eye Surgeries
- Quick Update
- a few questions
- caused by antidepressives?
- Finally something goes right!
- ICP Holes
- A few questions please
- Emotions, Emotions!
- Has anyones baby facial features change after surgery???
- I got to have a conversation with a cranio adult
- Colleges Teach about Cranio!
- link between autism, cranio and collagen disorders
- For those who had late diagnosis
- new and scared
- medical bills
- Breastfeeding Before Anesthesia?
- Dr. Fearon Experiences
- one month anniversary!!
- met a boy with cranio today
- Bummer Bears
- ICP on Wednesday
- Bling Your Band giveaway!
- 14 months postopop(endo sagittal ). Soft spot
- Feeling stressed and overwhelmed...
- Epicanthic folds?
- Advise Please- Do I move or wait till after?
- Sagittal - surgery type - strip or CVR
- Eye issue Qs
- check it out - i got a cranio awareness story published
- Head shape
- Metatopic?
- Sam :)
- Any Metopic Babies have Endo?
- Position of ears following surgery
- Metopic ridge ? - Hardness of ridge
- Post-op question, a little freaked out!
- so here we go again....
- New Here- See Pic, Advice Please!
- It's been a long time - remember us? Could use some help...
- Second Opinions??
- Ck fundraiser!!
- Call me crazy
- Endoscopic surgery for saggital cranio
- Adrian's Check Up
- Could this be Cranio?
- Meeting with Consultant 13th Aug
- Venogram and VEP's
- help me please
- Sawyer's metopic surgery...different procedure from what I thought.
- How soon was everyone's first checkup?
- Bumps on scar site
- 24 hours to go!
- Zig zag or Straight?
- frontal bossing
- change in face symmetry
- NS and CFS in NJ-NY area
- new lump growing on head
- South FL help!
- calling all metopic head pickers
- Question??? What to tell your cranio child when they grow up??
- cranioawareness
- is this normal for sagittal?
- Can an MRI replac a ct scan for diagnosing
- Insurance appeal letter!!
- Helmet question
- Protective Helmet?
- just sent an angry email to mother and baby magazine!
- Parade Magizine
- Came across old pictures
- changes for the worst?
- posterior fontanelle still open
- Anyone had hip dysplasia along with cranio?
- Screws?
- sagital question
- Hi everyone
- First Checkup!
- Having a terrible day!!
- both siblings with cranio?
- Need your honest opinions...
- Eyes are healthy!
- Could do with a hug right now
- Toilet training problems
- My nephew's metopic is definately fused and possibly coronal fused too - advice?
- Comments from a stranger
- how can I help this child with Apert's from Serbia
- A little late, but we are on the other side
- new question
- Angelo's helmet fitting today
- jakes sagital suture is starting to close now
- bump on incision
- Carters pics are posted!!
- Untreated Metopic
- Pre-Cranio Surgery Photo Shoot
- back a JR oxford for app tomorrow- very nervous
- Trigonocephaly? Please look at pics and give opinion!
- Gruff's 1st Cranioversary
- "On the other side!"
- Large head circumference with Metopic Cranio?
- Interesting story on strabismus/stereo vision
- Azi's 3yr Post-Op Checkup
- Insurance hurdles to get to Texas!
- Had initial appointemnt today at Oxford
- Update
- I <3 jr!
- Surgery Rescheduled Frustrations
- CT results back!!!
- how long were you worried for?
- How do I hold it together?
- Newspaper Article
- Questions about craniosynostosis being related to other conditions?
- getting a second opinion
- Fluid Pockets
- Please Explain Endoscopic way
- IMPORTANT QUESTION about Roseiola????
- 2 Month Post-Op Thought......
- More ridges?
- A few questions about craniosynostosis?
- sagittal ridge after surgery?
- pics attached: is this cranio?
- after surgery
- HMMM Confused?
- An update on my little one.
- We are almost there!
- Horizontal Ridge and Small Soft Spot= Cranio?
- Do you think this shape will improve?
- Pics attached, coronal ridges
- Happily ever after
- Got a cancellation date of this Thursday!
- one year f/u appt!
- Craniosaccral Therapy
- Sore Head Post Op ?
- Advice please? Did your kids have a CT?
- Tomorrow is the BIG day!
- 6 years
- metopic question.
- Abnormal Cranial Xray
- Language/Behavioral problems with Metopic Cranio?
- lambdoid craniosynostosis
- I am not lost :) - 6 Months Post Op Today - YAY
- No head growth?
- Sagittal foreheads after surgery...post pics here!
- ct scan of jakes brain
- pictures of ella
- Zac's 1 year Cranioversary today
- Pinching at the temples?
- Wow!! Two years to the day today!!!!
- so overwhelmed
- VPI anyone?
- More pictures of Ella's head. what do you all think?
- interesting article ....
- appointment tomarrow with a NS
- Is there a way to tell the difference between?
- We leave tomorrow
- Cant stop smiling now we are home!
- well
- AJ's ear is getting off center!!!
- weeping eyes?
- Help Ins is denying the helmet
- Please help-pushy NS wants endo approach at 5 months old?
- Scan on friday
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