PDA

View Full Version : Craniosynostosis Chat



Pages : 1 2 3 4 5 6 7 8 9 10 11 12 [13] 14 15 16 17 18 19 20 21 22 23 24

  1. cfs
  2. Consultant tomorrow!
  3. New pictures!
  4. 8 month check.
  5. consultation appt., this Wed.
  6. Lemon sign??
  7. Cranio siblings?
  8. Owen's appointment at Alder Hey today
  9. taking alex to the pedi today....
  10. Erins surgery is one week from today
  11. GOSH yesterday - good news but feel uneasy!
  12. No surgery needed!!!! :)
  13. Aaaaaaaaaaaaaaaaaaahhhhhhhhhhhhhhhhhhhhhhhh
  14. "button nose"
  15. 1 year Cranioversary!!!!!
  16. Symptoms of raised ICP?
  17. Self-image after surgery
  18. why dont doctors listen
  19. Sagittal in VA and ready for questions...
  20. Post op metopics....
  21. We have a date!!
  22. Headed to Dallas tomorrow- surgery Wednesday
  23. consult with dr fearon
  24. after surgery
  25. Anxious Mum with Sagittal Toddler
  26. met with the dr.
  27. Neuroblastoma test results today....
  28. We are in ST Louis geting ready for wed surgery
  29. What were you doing during the surgery?
  30. Erins caring bridge
  31. everyone's advice, need mom's that had the "strip" done
  32. Xander's MRI went...
  33. Just HRS from the other side
  34. Ben's Surgery Day is here
  35. It's for sure!! Glad they let me in on it!!
  36. Erin is on her way to the otherside
  37. need some help
  38. The first dr is done 1/2 way there
  39. Erin is out of surgery
  40. hmmmm?
  41. Our TV STAR!!!
  42. More Speech Diagnosis BLAH
  43. Finally A START!!!
  44. Ben update- day 2
  45. Surgery Cancelled! CT showed no fusion!
  46. Prof delighted with Cameron's progress!!
  47. lack of support
  48. Ben is headed home!
  49. Erin is doing verry well st louis childrens is a wonderful place
  50. Erins got to open an eye
  51. Cranio and Thyroid link?
  52. Ben's surgery pics
  53. Couple questions about surgery
  54. Dealing with questions from strangers
  55. Post-op emotions
  56. Starting a cranio charity
  57. Craniosynostosis reason for denial of life insurance
  58. Adam's 1 Yr Post Op Appt
  59. Brandt had a great check-up with CFS!
  60. First Breakdown
  61. How did you come by helmet therapy?
  62. Do you recommend genetic testing if I want more kids?
  63. Feeling Frustrated
  64. Just out of curiousity...pick my 3yr olds head!
  65. Anyone in San Diego, CA?
  66. Quick thank you and explaination
  67. The Craniokids store
  68. Outgrowing some birth "defects"???
  69. Looking for advice...
  70. How soon after surgery did you....
  71. did anyone have problems w/ blood cout droping more after surgery?
  72. Cornell or NYU anyone?
  73. Big Brother kissing closed suture
  74. more questions
  75. Appt 17-mar-2010 w/ps
  76. sacral dimple and cranio
  77. Update on Noah
  78. Question about Trig.
  79. just diagnosed with metopic now possible lamboid..
  80. Attention -Cranio Kid Members from TEXAS!
  81. Need some tips on how to take the best birdseye pictures!
  82. Update on Hayden
  83. Metopic with no ridge??
  84. Quintuplet Surprise on TLC
  85. To shave or not to shave...
  86. Metopic mommies please advise...confused............
  87. Mederma?
  88. Could this be cranio?? Opinions please!!!
  89. what would you do?
  90. My Blog
  91. Liams 1st birthday and guess what?!
  92. How soon after surgery can....
  93. asked to speak on the local news
  94. Finally!!!!!!
  95. Metopic babies and tummy time
  96. Ben got his helmet!
  97. OMG Abby fell and bumped her head
  98. Very New To This
  99. 3 Month old may have sagittal partialy closed
  100. Surgery delayed again...
  101. Surgery in 4 days
  102. baptism and major drama
  103. Why do you need to wait for the MMR after Blood Transfusion?
  104. Amy's Max picture from CAPPS done
  105. Another place?!?
  106. Metopic- now have surgery Date...........
  107. Very Cool Serendipity
  108. Ear Infections
  109. How long from diagnosis until surgery?
  110. Look at me!
  111. We finally have a date!!
  112. Is it all worth it?
  113. I'm new...
  114. Drooling...
  115. Should I say something?
  116. honest opinion please!!
  117. sinus issues and metopic
  118. my kid that is 2 yrs old,.. I need advice.
  119. for those with a metopic ridge
  120. Positional Craniosynostosis?
  121. Question about Post-CVR Surgery and Development
  122. We are on THE OTHER SIDE!!
  123. Joshuas headshape
  124. Cranio & Torticollis & Scoliosis
  125. Bad day. Ugh!
  126. Mya Kate and her diagnosis
  127. First post op freak out
  128. worried about surgery and CT
  129. Sasha's surgery, trigon
  130. Hey Helmet Mamas- a few questions
  131. Moms that had to wait months for surgery...
  132. Big Head Babies and Tummy Time
  133. Cranio is so much fun....NOT
  134. Song for Cranio movie
  135. Surgery pics and some questions
  136. Stuttering
  137. Miracles
  138. Decreased sensation / no sensation??
  139. One Year Ago
  140. Bad day
  141. Soft Spot Pulsing Again
  142. Liams 6 month post op check...
  143. Which sutures?
  144. Picture
  145. Surgery Tomorrow!
  146. My LO is sick, will it effect consult?
  147. errr... Appt. canceled
  148. My mom is convinced there is nothing wrong.
  149. new head shots
  150. Chicks Dig Scars shirts?
  151. Before pictures please
  152. surgery in a week!!!!
  153. look at my fatty!!
  154. Isaac has found...
  155. cranio questions
  156. head circumference
  157. I'm back and cant let it go even for 3 weeks...
  158. Pre-Op Appointment today
  159. Wish I knew this before our cranio journey began
  160. Normal Suture Fusion?
  161. when to do it
  162. A year ago today.....
  163. Another surgery date
  164. Does this sound like ICP?
  165. New Metopic Mom
  166. Surgery Date
  167. How long does the post-op not sleeping last?
  168. I got my cranio stuff from Amy Galm!
  169. Dr Fearon
  170. Dints and bumps...
  171. Dr. Fearon
  172. We're on the other side (sagittal)
  173. Another post op question
  174. We are done!!!
  175. Chromosome Testing
  176. Wow.......
  177. Update on Zane--metopic
  178. Question about post-op sagittal
  179. We have a date!!!!!
  180. Post in blog
  181. Surgery in 4 days; can't handle the wait
  182. great day...
  183. Finally... I posted pics..Trig.
  184. Helmet to encourage forehead growth?
  185. Article in Today's Parent magazine
  186. Having a terrible night dealing with surgery.
  187. What do you do to help?
  188. Pics for opinions, please!!!!Update!!!
  189. a question for metopic and saggital mommies
  190. So nervous!
  191. Skylar's 2nd Right Coronal cranio repair 4/8
  192. Surgery for Bradley tomorrow
  193. television talk
  194. i'm sure i've seen an untreated sagittal
  195. She officially has scoliosis ;-(
  196. what would you do?
  197. 6 months post-op
  198. You ladies are GREAT!
  199. Complications during Metopic surgery
  200. A grant for Chiari research
  201. Confused why "recipes" and such are PRIVATE
  202. Tips for flying alone with baby
  203. Celebrating Leah's 2 yr cranio surgery anniversary by Spreading Cranio Awareness!!
  204. So upset Addison has to have another surgery already
  205. feeling so much guilt...
  206. Poo!!
  207. Hoping for the best but I need to prepare for the worst.
  208. Kinda worried..
  209. Andrews Metopic ridge
  210. ear canals??
  211. Head Growth for Saggi's
  212. eye infections
  213. What causes craniosynostosis?
  214. whats this??
  215. Would like to see pics of a single coronal suture fused.
  216. AJ's 3 month post-op apt. at 6 months. OOPS
  217. Good luck today Crista (ProudMother2Dale) & Dale!
  218. Emailing
  219. Craniosynastosis/Ear infection Link?
  220. New Clearer Pics
  221. Can anyone explain to me what this is????
  222. Need mums with Ridge only !!
  223. Surgery is TODAY!!!!
  224. Kennedy has an op date!
  225. Check this out!
  226. Cool idea
  227. Sleep Problems?
  228. Wish us luck
  229. Veins
  230. Zane went to the NS today
  231. Fundraising-Questions
  232. I don't even know where to start
  233. Update on Sara Grace
  234. More pics in album
  235. I added more pictures
  236. Her eyes should open in the next day or so
  237. Please Help!!Anyone's child experience large clot after surgery??
  238. Post op appt update.
  239. Chop
  240. Eyes NOT open yet! Must they be open to be released from the hospital?
  241. Head SIze and Growth Chart?? Saggital Mommies
  242. Date change-.....
  243. Trying again
  244. Meeting with Dr.Fearon today
  245. Wish I knew before surgery & post-surgery question
  246. Meeting with Dr Fearon next thursday...nerves are setting in! help!
  247. So I contacted Dr. Fearon
  248. Raising awareness of Cranio!!
  249. Second surgery to open sutures?
  250. We have a date!