View Full Version : Craniosynostosis Chat
- What we found out today
- Quick spelling question for the Americans!
- put pics up in album
- Vietnam Agent Orange Exposure Linked To Cranio?
- Can't believe its been a year.
- Dr Fearons reply
- We got our Surgery Date - 10 weeks today
- Travelling for Surgery
- Sara Grace Update
- Bad news from the insurance company
- Fontanel and Metopic
- 2nd guessing myself and Layne's head
- JJ is home!
- Dillon's NS appt. today, decision made
- Needing the Pep Talk...
- We chose Dr. Fearon!
- doctors...arghh...
- New Simon Blog
- First official follow up today
- Bradley's 16mth post-op
- Optic Nerve
- Genetics Update
- A different way of looking at it...
- Keegan - one year post-op
- Colin's surgery is three weeks away.
- update & questions
- on the other side again :)
- 1 week and 2 days to go until Addison's surgery
- Kid's say it how they see it
- Yearly Check UP
- ??? Phisical and developmental signs of cranio??? Waiting on a diagnosis!!
- So what do you think about metopic ridges in families?
- For the First time EVER...
- Question about post op children
- yay no surgery for us
- Springs coming out today
- Pros and Cons of Endo and CVR for Sagittal
- Sagittal Mommies
- Just a Quick Update on Lennon
- Alex had his EI evaluation today
- Update on Andrew
- PJ's for hospital after surgery??
- Breastfeeding after Surgery
- How important?!?
- Little Joshs update...
- post-op headbanging ?
- Update on Khalil: Finally Got a Surgery Date!
- Are you as happy as you thought you would be after surgery?
- More than one surgery?
- Thank you! Thank you all!!!
- 3 days to go until Addison's Surgery
- Head size question...
- Meeting Plastic Surgeon, what do you wish you had known before surgery??
- Hotels in Oxford ??
- we meet the surgeon in 2 weeks and im ill with worry a nervous wreck
- ICP check
- couldn't resist
- specialists?
- length?!?
- Hi everyone
- Plastic Surgeon appt went great!! Interesting!!
- Metopic Ridges???
- 5 Years Post-Op!
- Dr. Fearon Insurance info if it helps...
- Our Appt
- FOA and filling in??
- Noah, 7 months
- For all you headpickers....
- Had to explain...
- We leave tomorrow for surgery Wednesday.
- *wave* anyone remember me?
- Headpickers - help! soft spots
- Simon is in surgery right now.
- Metopic Synostosis
- follow up appointment
- Saw an adult with the Zig Zag scar the other day
- Confused after EEG results...
- Is there such a thing as inherited, or "hereditary" craniostenosis?
- Anyone else ALSO worried about your child's head being SMALL?
- Help
- ICP signs
- Jocelyn's skull isn't growing in very well...
- Ughhhh
- Sam at 11 months post CVR for sagittal
- Carters Surgery Pics
- Ways to make them comfy?
- Sams appoinment yesterday!
- Meeting tomorrow
- All mothers to saggital babies!!!
- NEW lumps and bumps 10 months post op???
- No ICP
- $$$$ wow $$$$
- Meeting
- Even you guys are going to think I'm crazy...
- Opinions???
- Not walking yet?
- Frustrated!!
- We are so lucky to have gotten loads of kind donations
- Yep, another Noah post...
- Six years after surgery and having behavioral and eye problems
- I educated a neonatal nurse!!!
- Question about after surgery?
- date set
- Big Appetite Post-Op?
- Only home one night and already have a question for you!
- Lumps
- Would you file a malpractice suit?
- sleeping on the belly
- Mums with sagittal children who had total calvarial remodeling.
- Metopic Parents
- Flying to NYC Tuesday-trying to prepare but...
- Update on Mitchell - Unicoronal Cranio
- Balance???
- Nightmares?
- Quick help!!!!!!!!!!!!!
- Surgery Follow-Up
- Update on Lola
- Has anyone had insurance co know what $ amt they stop paying?
- Back from New York City --Dr. S's appointment
- 5 months post surgery - soft squishy spot??
- Jackson's Cranioversary!
- HI from Seth in England!
- Hello all.
- Breast feeding after cranial vault remodeling
- Travelling for Surgery Questions
- California Medi-Cal Insurance
- Packing for surgery?
- Hello from Glasgow!
- Dr. Marsh St. Louis, MO?
- Call to arms!!! Need Dr Fearon patients to help...
- Going for our 1 month post op tomorrow
- Hi to all my peeps...I miss you! Quintin isdoing great! PICS
- Osteo therapy with Surgery (for benefit of derma)
- Larkin-
- will you check out my pics
- Overdue update on Dillon
- Metopic Mom's got a question for you!
- Aetna Ins and Dr. Fearon anyone?
- Moderate Expressive Language Delay--metopic
- Mitchell is on the other side!!!!
- Ridge getting bigger...
- Metopic head shape (slant in back?)
- Question - metopic mild or severe?
- Question - Head Size Correlation?
- We finally have a surgery date
- Advice on quaratining before surgery
- Metopic, no delays
- The Good, The Bad, & The Confusing...
- Insurance appeal!
- This time next week
- opinions please...what do you think of Alex's head?
- Help the CCA!!!
- Eleanor head pics 4 months post op
- Looking for Volunteers ......
- Fearing the worst
- Nick's First Labs
- Opthamologist Appointment
- Is this normal?
- Ridge without cranio
- Celebrity with possible Cranio?
- is it really cosmetic?
- Matthew's surgery is Monday
- metopic suture questions...
- Almost 1 year post op
- 6 week post-op head pictures
- Laura's follow-up on 15 September
- Update on Evie
- Calling all California Families
- Poll- Cranio with Sacral dimple?
- oh no helmet too tight
- Widows Peak Hairline
- a pic for you lovely head pickers
- How many of you had surgery with no blood transfusion, if any!
- Dr. Fearon & Dr. Staffenberg
- Headpickers help me!
- scar problem..... :(
- going to the geneticist today
- Anyone have issues with "pre-existing condition" when switching ins??
- Post surgery Lambdoidal kids
- Sagittal cranio how often needs second surgery?
- Today's Appointment with Surgeon
- Max- four months post-op and another appointment
- Dr. Sacco contracting with BCBS!
- Insurance calling this a pre-existing condition!!
- questions about coronal
- Where has the ask the doctor forum gone?
- Resource Listing - info needed
- The day from hell...
- Matthew is home from surgery!
- Latest Pictures
- Calling all Dr. Fearon Patients:
- Matthew has fever, vomiting - surgery was Mon.
- Brillant article about Cranio surgery in Melbourne,Australia
- new here
- URGENT - Any other Dr. Fearon patients?
- Born with a Metopic Ridge, update
- Can someone tell me?
- After Surgery
- So I largely missed Rohan's cranioversary :)
- It's official, I'm a head picker
- health visitor
- Questions.....
- Please read me
- almost 2 weeks post op and one eye still nearly fully shut
- A quick update...
- Plagio and cranio
- Coronal Cranio and eye problems
- Charlie's surgery
- New pictures of Matthew post op and update
- Zara's eye examination......
- We Won Our Appeal!
- Cranio and Craniokids.org awareness?
- Website-Craniosynostosis
- Simon's Hospital
- Update on metopic son-met with surgeon
- ear alignment question
- CK business cards
- McKenna's year follow up
- Our Cranio Kids at the Heros 4 Hope Gala
- Brandt's CFS check-up and photos
- Davis is on the other side
- Best wishes to Lori Ann & Stephen!
- Update on Laura's follow-up with Mr Wall at Oxford
- dents in head!
- For those who requested business cards
- Raeleen's 3 month post op visit
- I feel defeated!
- Lumps behind the ears
- Any Pictures After a Second Surgery?
- Can you look at these pics for a friend please?
- Metopic POST OP - RESULTS
- post op metopic craino with odd bone growth
- Sometimes it stings...
- Update on our appointment...still no answers
- Lumps and Bumps Post Op?
- Head measurements
- My daughter has been diagnosed with mild to moderate nerve deafness!
- Uncontrolled shaking?
- Would like your thoughts...
- Insurance Questions (For those in the US)
- Thank you thank you thank you!!!
- Metopic Surgery - length of hospital stay?
- Any experience with Dr. Boutros in Houston?
- you now have my full attention
- Haven't been here in awhile....
- Sweating with saggital cranio?
- Should I donate blood for CVR?
- Cranio and hearing loss.
- Another weirdness
- Sleep Issues
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